carpermi
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Everything posted by carpermi
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ARCHIVED 2.5 Yrs After Diagnosis & Need Help On Symptoms
carpermi replied to carpermi's topic in Coping with Celiac Disease
Thank you cycleladying for responding. Yes blood work for celiac negative too. And nothing indicates thyroid, which I agree you would think that is the case. Literally don't know what to do. If I was getting trace amounts of gluten would it show in the blood work? I thought they weren't reliable? Again. Thank you. This makes you feel crazy. I am at the point... -
ARCHIVED 2.5 Yrs After Diagnosis & Need Help On Symptoms
carpermi posted a topic in Coping with Celiac Disease
I literally feel like I cannot do this any more. Since diagnosis I still am struggling. Last year I was so sick. Endoscopy shows intestine healed. Diagnosed supposedly with chronic ebv last fall but not all doctors by it. Did everything right and didn't get better. Gallbladder removed this April. Was finally starting to and tanked 2 weeks ago. I do not eat... -
ARCHIVED Positive Biopsy/negative Blood Results-Dr States No Celiac
carpermi replied to carpermi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Marcus, Yes...had been eating gluten free bread for 3 months. Reintroduced gluten for 4 days before blood test but limited because it was messing with me. Had some cereal and a piece of pizza and crackers over the 4 days. Some flour as a thickner in curry as well. I will get copies tomorrow and post. notme!...I am going to a GI specialist. Interestingly... -
ARCHIVED Positive Biopsy/negative Blood Results-Dr States No Celiac
carpermi posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
A little overwhelmed. Doctor stated last week after positive biopsy they want to run blood work (done in reverse, vomitting blood). They stated they were 99% sure I was celiac and that the biopsy was not as strong because I had altered my diet the last 3 months excluded gluten (ate some hidden...was being treated for ulcers). Blood work came back negative...