valerieanne

I recently posted in the DH thread... My dd10 was diagnosed with DH almost five years ago, and we've been gluten-free since (I have celiac disease). Her annual cbc results are always borderline anemic/low iron, explained as 'her normal'. A new doctor this year ordered the fecal occult, which showed moderate levels of microscopic rbcs. She suspected a dairy...

Thanks, ladies. I am very hesitant to do the gluten challenge. We started one on ds2 last June, but had to quit within five days due to vomiting, rash and diarhhea. The thought of another scarring episode for dd, in addition to the gi pain... No, we'll skip it. If she wants to do one when she's older, we'll revisit the idea of a gluten challenge. Restricting...

My daughter was diagnosed with DH by a dermatologist five years ago, based on a 'textbook presentation'. No bloodwork, no biopsy, just put on a gluten-free diet immediately. She had lesions from between her fingers, all the way up the back of her arms, to her shoulders. Watery blisters, itchy, painful during healing. Her elbows are heavily scarred from that...

My dd was diagnosed at five with textbook dermatitis herpetiformis. She is assumed to be celiac as well, but it was not necessary to continue with testing, since DH=celiac disease=Gluten Free for life. Her symptoms varied. Joint pain, anemia, lactose intolerant (now that her GI tract is healed, she can have dairy), fatigue, "eczema" (was actually DH), etc...

It does get easier, wmramsel. It is hard to watch your child get sick and go through recovery... all due to five cheerios. Frustrating. Mistakes happen, even to us grown-ups who have a full vocabulary, communication skills and access to google. Once you are able to train her to be gluten-free, she will amaze you. Hey, if four year olds can manage their own...

We are Canadian. For the tax deduction (medical diet), a formal diagnosis is required. Additionally, any issues we've had with accomodations have been resolved immediately. Once we explain DH and celiac disease as an autoimmune disorder, not a lifestyle choice, and produce a letter of diagnosis stating that we have a medical need to be gluten free for life...

Tarnalberry, before this gluten challenge I had a perfectly healthy little boy. I have no strong motivation to diagnose him at this point. In the future, we may need or want an official diagnosis. Until then, I am happy to wait!! Tonight, he is finally keeping food down and resting. He did get a rash, but not a DH rash. Poor little guy. Gastroenteritis...

To clarify, my 8 year old daughter has a DH diagnosis, I have a celiac disease diagnosis, and my two year old son has no diagnosis. We have kept him gluten free as a precaution, on drs advice. At two, they are able to do the blood tests for antibodies with relative accuracy. So, just after his second birthday, they wanted to test him. In order to test him...

Thank you! Yes, I am going to request a genetic test and wait until he is older for a gluten challenge. We had such a great doctor three years ago, I put my full trust in him and followed his recommendations to the letter. We have moved, and it is becoming clear to me that I may know more about DH and celiac disease than our current doctor. I went with her...

First post here. My 8yo dd was diagnosed with DH three years ago, and I was subsequently diagnosed as celiac. We have been gluten-free for three years, including my two year old ds. He was exposed to gluten via breastmilk twice at the age of five months, on doctor's recommendation (research out of UK suggesting lowered incidence of celiac, if exposed at...