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AveryAndMorgansMom

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  1. This is incorrect. EE *is* by nature, a patchy disease. You're right in saying that you either have it or don't. Often you can have it, but the biopsy won't show it *if* the biopsy wasn't taken where there are eosinophils. The old standard was 20 eosinophils per high power field. But, it's also determined by what the eosinophils are doing (clustered...
  2. My twin daughters both have eosinophilic disorders. Morgan has EE, Avery has EGE. Morgan was diagnosed at 15 months of age after severe constipation that wouldn't get better with diet modifications. It was horrible. She could not go poop! The doctor suspected Celiac disease and did the scope even though her bloodwork for Celiac came back negative. The...
  3. I need a GI doctor in Reno or somewhere near there . Thank you!!!!! Mariah
  4. Origionally, my doctor said that the blood tests aren't as accurate for kids under 2, but I'm not sure about the prometheus lab. Maybe that one is more reliable?
  5. I don't know which blood test he did. She was not on a gluten-free diet. I've taken her off all milk products too (I just found out that I'm allergic to casein too).
  6. Hi. I'm new here and have some questions. I hope someone can help me. I'm really frustrated right now. I have twin daughters who are 14 months old. I think that Morgan may have celiac disease. Ever since I started them on solid foods at 7 months old (they were exclusively breast fed before then and are still breastfed about 4 times a day), Morgan...
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