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Jdorrferball

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Everything posted by Jdorrferball

  1. Jdorrferball
    Hmm...I understand what you are saying in the post you linked to. But something about that just doesn't sit right. Still trying to wrap my brain around it
  2. Jdorrferball
    My daughter, 16, was having some extreme fatigue and the doc ran some tests and found her ferritin level to be only 3. I talked him into some tests for celiac since I am suspicious of celiac in myself. Her tTG IGA was 8.6. According to the lab value less than 20 is negative. I have seen other labs say less than 4 is negative and that 8.6 would be a weak...
  3. Jdorrferball
    I will DEFINITELY let you know. Thanks so much for all of your help and kind words!!
  4. Jdorrferball
    I'm doing pretty well. Thank you for asking! I have had some back and forth periods of eating gluten. Had a heart attack in September that took us completely off guard. Turns out it was caused by a tear in one of my arteries. Nothing at all to so with cholesterol and such. In fact my cholesterol is only 80!! Being gluten free does bring me a lot of...
  5. Jdorrferball
    Okay let's see... She is 9 1/2 with no real digestive complaints. She has been eating gluten for several months (August I think) and was only gluten free for about two weeks before my husband gave her and the other children gluten "without thinking about it". She only threw up once and had a headache for a couple of days. She has always had some problems...
  6. Jdorrferball
    Sorry...it should say she was one of my children who threw up, not threw about. Her primary care doc put her on oral steroids to see if they would help. At the time she only had the rash on her stomach. The steroids helped a tiny bit. When the ten days on the steroids were up, the rash came back worse and in places she didn't have it before...life her forearms...
  7. Jdorrferball
    I posted several months back about myself and concern over possible celiac. I still don't have any definitive answers from a doctor but I DO know for certain that gluten is my enemy Now I have some concerns about a rash that my daughter has. It is different than the rash I have but it's widespread and terribly itchy for her. Wondering if y'all could...
  8. Jdorrferball
    Thank you so much! One thing I have noticed is that though I haven't really gotten anything new the last few days, the spots that are starting to heal keep getting inflamed again. I also think ibuprofen may have been a trigger for the more severe outbreak as I was taking it every 6 hours or so for a few days.
  9. Jdorrferball
    Hello! Quick question, hopefully I have not been diagnosed with DH, but am very suspicious of it. Started with a strange rash, went gluten free and rash went away. Went back to eating gluten and it came back and I have had new bumps each day since going back to eating gluten. I had one cluster that I recently posted pics of which was far more severe...
  10. Jdorrferball
    Ya know, I may very well need to come here and pitch a hissy fit lol. During our short gluten free trial, all I wanted was FAST FOOD of the gluteny variety I craved it terribly...I really did. I think I may very well just forget the testing and go gluten free. I don't know how much longer I can stand waiting and I certainly don't want to do any further...
  11. Jdorrferball
    Oh boy...the perforated colon. What a crazy story. In January 2009 after the birth of my 7th child I started having bowel issues. Lots of CRAZY noises like I had never heard and very loose stools. Being the stubborn woman that I am, I completely ignored my problems despite urging from my hubby and others that I really needed to see a doctor. Fast forward...
  12. Jdorrferball
    Right now more than ever I am so thankful we HOMESCHOOL! I don't have to worry about what they might get at school I have been considering just going gluten free and assuming that I likely have Celiac disease. I of course would have everyone else in the house gluten free as well...hard enough to cook for 12 people without making separate meals! Plus...
  13. Jdorrferball
    If you click the link and the black screen appears, you should be able to click the X on the right hand side where it says "Close" and then the pic shows up. Weird I know.... As I replied to squirmy above...the rash is bilateral...both elbows and has been on both knees though it is currently only on one and much more mild than what is in the pics. The...
  14. Jdorrferball
    Thanks for looking at the pics I do actually the rash on both elbows, and have had it on both knees. It is much milder than what is in the pics that I posted. In fact, it has been mild this whole time and not all that itchy, until this new breakout that I posted. My hubby was hollering at me at 3 a.m. to stop scratchin it My GI doc has ordered some...
  15. Jdorrferball
    I had a perforated colon in February and was told I have crohns disease. Kind of a long story but I've been suspicious for gluten sensitivity in myself and some of my children and then I started getting this odd rash a couple months ago. Ive always suffered with headaches and migraines for as long as i can remember. I have had chronic diarrhea for about four...
  16. Jdorrferball
    Okay...odd but when I try to view them through the links when I am on my phone, they show up fine. If I'm on the computer, it appears to be a black screen but I think it's really just a huge version of the pic. On the right hand side you can click where it says "close" and whalah...there is the pic! Sorry about the confusion... I'm new to flickr!
  17. Jdorrferball
    I changed the settings on my flikr account. Could you try again? Yes I am still eating gluten. I had a perforated colon in February and was told I have crohns a disease. Kind of a long story but I've been suspicious for gluten sensitivity in myself and some of my children and then I started getting this odd rash a couple months ago. Ive always suffered...
  18. Jdorrferball
    Here are three photos of my rash. This is worse than what I usually get. This is the progression over a couple of days. The first pic is what it looked like when I woke up Saturday morning. The second pic is from Sunday afternoon and the last is from this morning. This particular area has been far more itchy than what I usually deal with. Usually I just...
  19. Jdorrferball
    Thank you everyone for your replies! Yes greenbeanie, we do have a lot going on! Never a dull moment in this house for sure. It is reassuring to me to hear that other people have had strong reactions when eating gluten after such a short time gluten free. My hubby, though he tries to be supportive, looks at me like I'm overreacting when I say "I know...
  20. Jdorrferball
    Hello everyone! I have been reading over this wonderful forum and have been so blessed by the information and support here! I'm a 40 year old mama of 10....no that is not a typo My 10th child was born almost 8 weeks early when surgery for a perforated colon left me waking up to full blown labor (which they initially thought before surgery was a ruptured...
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