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LoveMyDucklings

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by LoveMyDucklings

  1. LoveMyDucklings
    Thank you seezee! It's so good to have support, and have someone tell you that you're right to so what you're doing, even if it's just over the Internet. My husband is deployed right now, so while he supports me, it's not the same as when he is home. My daughter has a rash, which started as just a few dots. The ped thought it was molluscum (it doesn't...
  2. LoveMyDucklings
    Ped GI was just as unhelpful. Says she "senses that it's just stool withholding" and need to have her on enemas and stool softeners to get her over the anxiety and then she'll get better. She ran a CBC, thyroid, kidney and liver function, and checked vit d levels. No further testing. We go back in a month. An enema a day for 3 days in a row, plus 1/2 cap...
  3. LoveMyDucklings
    KGCeliacmom, that sounds like us too! I "joke" that my 2 y/o is bipolar because of how moody she is. I realize that some of it is normal 2 year old behavior and frustrations, but this goes beyond that!
  4. LoveMyDucklings
    There isn't a ref range listed on the paper.
  5. LoveMyDucklings
    There's no ref range on the results paper for the IgA. Oops, I wasn't clear, the GI appt is next Tuesday, the 30th. I'm hoping for answers, and more testing. She's not even on the growth chart for weight. She lost a pound since her appt a month ago. The ped said he wondered of it was the poop that came out. If it was, that's good it came out, bad that...
  6. LoveMyDucklings
    Yeah, there isn't a ref range provided on the paper for the IgA.
  7. LoveMyDucklings
    I have the results in hand now. Ped GI appt next Tuesday. The ped acted like gluten intolerance didnt exist and said "gluten is a ht topic right now". :/ TTG IgG 1 ref range (11-26) TTG IgA <1 Endomysial IgA negative Gliadin IgA 1 ref range (0-20) IgA 29 Gliadin IgG 2 ref range (0-20)
  8. LoveMyDucklings
    I have the results in hand. TTG IgG 1 ref range (11-26) TTG IgA <1 Endomysial IgA negative Gliadin IgA 1 ref range (0-20) IgA 29 Gliadin IgG 2 ref range (0-20)
  9. LoveMyDucklings
    My 2 year old (tested negative on celiac panel, bit has a lot of symptoms) gets these sores on her tongue. They seem to bother her, because she'll stick her tongue out a lot, and put her fingers in her mouth a lot. They almost look like burns or something, but obviously aren't since she hasn't hd anything hot. They come and go, sometimes so quickly that one...
  10. LoveMyDucklings
    That's exactly what I'm worried about with using enemas! The problem with miralax is that you have to drink a lot of fluid with it, and she doesn't drink or eat much because she is always "full". Or at least, she doesn't eat/drink a lot predictably. I've never heard of lansoil. What is that? Is it prescription?
  11. LoveMyDucklings
    Ped GI appt for July 30. Not too far away. I'm feeling really stressed out though, because she has decided she won't take the miralax or the lactulose at all. I hate having to give an enema every 4 days for her to poop at all. She's gotten to where she doesn't go unless I give her an enema. :'(
  12. LoveMyDucklings
    Thanks! I'm not sure what was included in the panel. She sees the ped for a follow up on Monday and I'm going to ask for a copy of the results. What test *should* she have gotten? She'll be 2 on Friday; I'm wondering about the possibility of a false negative. The ped is suppose to put in a referral for GI. I'm keeping her on gluten for now, until we...
  13. LoveMyDucklings
    Goodness! No pet cats or animal jobs for him! Yeah, too late to call now today, but I'll call tomorrow afternoon after my morning meeting. I'm assuming it'll take a while to get an appt with GI, so I want to call ASAP! It is awful to think that it's possible that what I'm feeding her is causing her pain and constipation. She's a baby (2 on Friday), she...
  14. LoveMyDucklings
    Yikes, mommy2krj, hope your guy is feeling better soon!! I'm thinking I'll call back tomorrow and ask for the GI referral to go ahead be put in. The sooner I have the referral, the sooner I can make the appointment. I don't know if I should try going gluten-free and see what happens, or if I should wait until we see the GI, in case they want to do more...
  15. LoveMyDucklings
    Wow. This is SO us! I'm sorry you're going through this too, but it's nice to know that someone out there understands! Unfortunately, my daughter just tested negative for celiac. So I have no idea what the cause is of her pain, constipation, etc. :'(
  16. LoveMyDucklings
    The nurse just told me that all the results were either normal or negative. I'm actually feeling kind of down about it, because my baby still can't poop and that was going to be my "simple answer". I gave her an enema last night, and she hadn't pooped since her last one 4 days before that. Gotta wait until next week to get the referral for the ped GI...
  17. LoveMyDucklings
    (Fair warning: this is going to be long and rambling!) The wait sucks! Especially because I feel like the worst mother for feeding my child poison, basically, while we wait for results and possible scope. The panel was done June 28, and the ped said it would take at least a week. The 4th of July holiday was in there too though, so maybe that will postpone...
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