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frustratedpenguin

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by frustratedpenguin

  1. frustratedpenguin
    Well... it's over now. My sister-in-law caved and went back to eating her wheat bran. She absolutely *refused* to take the Restoralax. She would rather eat wheat (even though she went through extreme withdrawals after going gluten free) than take Restoralax which is completely safe... especially for just a couple of months. It didn't matter how much I explained...
  2. frustratedpenguin
    MomBTired, when your son had the scopes, what were the results of the biopsy? Was there any inflammation at all in the duodenum? Sometimes when there is inflammation and it's non-specific, doctors simply say, "It's not Celiac Disease." They literally wait until it progresses to the point where the villi (the little hairy things in the duodenum) are completely...
  3. frustratedpenguin
    LauraTX, I know for sure that my husband had his IgA and IgG levels checked and he was not deficient. That's why I posted the link to the study in Iran. Accuracy is based on the degree of villous atrophy. Even people with Marsh IIIC (the worst villous atrophy), the diagnostic accuracy level of the blood test was only about 80%. It is significantly lower in...
  4. frustratedpenguin
    I forgot to specify. She has only been gluten free for about a week.
  5. frustratedpenguin
    Oh, by the way. At that GI office, there are 9 gastroenterologists. On the wait list (just the wait list; not how many active patients), there are 4,000-6,000 people!!! That is how backed up our system is. Too many doctors want to treat symptoms and not root causes, so there are *a lot* of sick people out there. And the government single-tier health care...
  6. frustratedpenguin
    She downs the prune juice like water, but even then she'll still suffer with constipation. Something is very, very wrong. Her doctor is absolutely useless. He did the blood test, it came back as negative, he said, "You don't have Celiac Disease." She explained how her brother (my husband) was also negative, but his biopsy was positive, and that she would...
  7. frustratedpenguin
    Yeah... we have been having to make it. But I hate anyone having to rely on me for the bread. Sometimes I get behind. And then I need to deliver it to them beforehand so they can get it ready. It's a huge pain. Ugh.
  8. frustratedpenguin
    My husband was recently diagnosed with Celiac Disease. He isn't your typical case. I mean, he had the bad diarrhea his whole life, but he struggled with being overweight. His is a story for another day. Let's just say his blood test was *always* negative, no matter how many times throughout the years he had it done (Anti-TTg-IgA). He always ate lots of gluten...
  9. frustratedpenguin
    Our church has a dilemma. My husband has Celiac Disease, and there is another guy there that is allergic to the cassava plant (tapioca) and potato. He is trying to eat gluten free too, anyway. But that poses a HUGE problem. Most gluten free goods have either tapioca and/or potato. I found a brand at our local Sobeys (I forget the brand of the bread, but it...
  10. frustratedpenguin
    This is my 6th pregnancy. My first two are miscarriages, the 3rd my son was born, 4th was miscarriage, and 5th my daughter was born. Now I am on my 6th and noticed that I am likely miscarrying again. I accidentally noticed that I feel better on a gluten free diet. My husband has health issues, so we put him on a gluten free diet and so naturally, I began...
  11. frustratedpenguin
    Thank-you pricklypear1971!!! I agree with the link you gave me. A diagnosis IS important. But it's frustrating because he absolutely, positively cannot eat gluten. He has been eating it his entire life, but he certainly can't eat it now. Actually, he has been quite sickly his entire life, asthma, gets the flu multiple times a year every year, etc. He...
  12. frustratedpenguin
    Thanks. But just FYI... I know that in the case with the amaranth, nothing was contaminated with wheat. All the flours that I used I had previously used in a bread loaf that I made several days before. The only thing new that I added (because i had run out of the sorghum flour that I was using) was amaranth. Which was not even bought in bulk. It was a packaged...
  13. frustratedpenguin
    Oops. I edited my post and added the link in.
  14. frustratedpenguin
    Bartfull, It certainly wasn't anything else but the Einkorn. The only IgE allergy he has is to shrimp. But it only gives him hives. And he didn't eat any. The night before he had food for supper (uncontaminated and made from scratch) that he always eats, and then at about 10pm he purposely tried the einkorn to see what would happen. In the morning...
  15. frustratedpenguin
    The reason why I brought up the Cyrex cross reactive blood tests (Open Original Shared Link) is because he gets swollen joints several days later from coffee & chocolate, which are also common cross reaction foods. There are foods where your body thinks it is gluten when it's not. I just wish there was a way to do tests without consuming the offending...
  16. frustratedpenguin
    My husband cut out eating all gluten in October. His IBS, GERD, and rheumatoid arthritis completely went away. In January, he snuck a piece of pizza and the next day he had gas like he ate 50 cans of beans, and diarrhea. Then a few days later his knee swelled way out and he could barely walk, as well as swelling in all of his knuckles. This subsided after...
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