ryo

it can take time. at 6 months one of our doctors told us that we must still be feeding her gluten. devastating to hear! after talking with our GI doctor we felt much better. she said it can take a full year to really see a change in the numbers. at 1 year my daughters levels are almost back to "normal" and they were over 100 when diagnosed. can...

i would not allow my daughter to use any products with gluten. i meet with her teachers each year and go over the planned projects. we eliminate or substitute any projects that wouldn't be safe. my daughter eats on a carpet square at school and we got her own sq (it is slightly bigger then the others) and stored in a separate place. it sounds like...

i felt the same way. in the end i am so glad we did the testing. my daughter (6 years old) is amazing at keeping herself safe and staying away from gluten. her school has never questioned me and has been so supportive. our home is 100% gluten free and not one single person in our family questions her condition. i truly believe that all of this is because...

the wait is so hard! we stopped feeing our daughter gluten right after the blood test (we didn't know better and were told to by our doctor). it took a few weeks to get into the GI Dr. and then we had to feed her gluten for a month before final testing. i thought i was going to fall apart every time we gave her gluten but i am SO glad we pushed through...

i am thrilled about this... "Many companies are taking the "gluten free" label off things because of the new government standard they are implementing. Companies aren't suppose to make the claim if they can't back it up even if there are no gluten ingredients in it." if they can't back it up i don't want to feed it to my daughter! i know it will make...

the test strips are a great idea! at this point i would love to have the help identifying if we have a gluten issue. we are working closely with an endocrinologist. when this all started she also had a low hormone level that was cause for further investigation. at the same time her thyroid was tested and it appears to be in good shape. i asked about...

i need to try to put my mind at ease. our daughter is 5.5 years old and 6 months into her diagnoses. the reason we found out she has celiac was because she didn't grow for about a year. as of today she has gained 1 pound and grown 1 inch in 6 months. we have seen so many physical and mental changes in her since going gluten-free but i honestly expected...

thank you all for your thoughts. i did call her GI doctor a few days ago. today we had all of her blood work done and are now waiting results. over the past 6 months she has gained 1 pound and grown 1 inch. based on the growth chart she has actually fallen further off her curve. i know i need to keep this all in perspective but with the way she feels...

our daughter had a really hard time going to sleep after she went gluten-free. it was so crazy to see but she would stay up super late (in her bed) and pop out of bed bright and early. before she was gluten-free she could sleep in until 10-11am. it lasted for about a month or so then it balanced out nicely. good luck!

sending you some positive thoughts. my daughter was diagnosed in august of this year and i was so nervous going into the scope. she is 5 so was able to understand a little of what was going to happen to her. it was over really quickly and within a few hours she felt great. we also were advised to take her off gluten before we went to the GI dr. I was...

she is 5 years old and we have been trying to figure out if it is something else going on with her. it is the level of being worn out connected with the not eating that really has me worried. it could just be a normal development stage and it has gotten so hard for us to separate the two issues.

hi, my daughter was diagnosed with celiac in august. our home is 99% gluten-free (my husband still keeps some beer in the house) and for the first 5 months she did great. we had a few miss-steps where she was glutened and we were always able to pin point what had happened (eating out once, and another time i bought the wrong bread and gave it to her, not...

thanks so much for your tips and recipes! i am super new to gluten-free baking and i want to "wow" the class so they allow me to keep doing this for parties. i figure if the kids don't notice the cookies are gluten-free it will be a huge win! i am going to start experimenting this weekend and will let you know how it goes

thanks for the info and recipes! i made it for her class but am going to try the recipe that smilla posted next time. so far our teachers/school have been amazing at making changes for us. we replaced all the play dough, they stored all the wooden tools for the year, and washed everything else in the dishwasher. i still brought in a box of tools and...

i am looking for your very best sugar cookie recipe! i would like to provide the undecorated cookies to my daughters class in order to avoid having to keep her home from school that day thanks in advance!