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JohnS

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Everything posted by JohnS

  1. JohnS
    Colonoscopy done earlier this year, one small polyp removed, biospsy neg. Blood test and ultrasound done for liver as part of abdominal US. All normal. No GI doc has even mentioned Chron's or UC. IMO, I may have SIBO, due to previous antiobiotic issues previous to all this starting. I know when I take an antibiotic, things get better. When I take...
  2. JohnS
    Anyone, do I have Celiac or not. THere is no census of opionion by my GI doctors, 2 say yes, 2 say no. Need a tie breaker. If NO, then what would cause the high numbers on some tests?
  3. JohnS
    That is correct, the genes they test are DQ2 which 95% of all Celiacs have, and DQ8, which 5% of Celiacs have, combined I am DQ2-. DQ8- This test does not depend on eating gluten or not, you can be gluten free for 10 years, that will not change your genes, either you have it or you don't. But is it an accurate test?
  4. JohnS
    Mine came back <0.1x which they state on the results as EXTREMELY LOW Is this a reliable test? So far my test results from eveything are" Endoscopy with 9 biopsies ... Neg Anti gilandin antibodies ... 1:10 stated as borderline Transgulatminase ab IgA ... 60.9 neg is <15 """"""" IgG ... < 15 ...
  5. JohnS
    Thank you very much, I will look into him.
  6. JohnS
    Need a good GI doc as soon as possible for Celiac. I have an appt with Dr Green at Columbia, but earliest they could give it to me was late Dec. I have been to 4 GI docs over the last several years and they know less than I do, one said avoid Corn! I have no problem in traveling up to 100 miles. Would be great if you could recommend one in NYC, Long Island...
  7. JohnS
    They did do x rays and no damage was found, also RH factor was 9, below 15 is OK.
  8. JohnS
    OK, thanks, I will get my blood tests together and post the relavent info. Just to let you guys know, I have been to 4 GI docs since 2007 for my stomach issues. I had the blood tests done and all have been borderline according to the docs, so I assumed it as a positive. I had a biopsy done by one doc and he took over 11 samples and they did not find indication...
  9. JohnS
    She is a Rheumatologist, so naturally she looks at it from her speciality standpoint. I just read something elsewhere where many people that are being treated for RA actually have Celiac and are being treated for the wrong disease. This sounds like me, the antibiotic the other Rheumy gave me actually made my stomach worse and my symptoms and blood workup...
  10. JohnS
    Here is another one, Saccharomyces cerevisiae Ab Iga = 50.4, anything over 20.1 is positive
  11. JohnS
    Maybe 2 months, cannot say 100% gluten free, may have been cross contamination, that is always a possibility. I do not know what tests are specific to Celiac, they are lumped all together, just know when I checked one that was out of range, Transgultanase Ab Iga =60.9, it referred to Celiac. I have others too. I do not want to be treated for a rheumatic...
  12. JohnS
    She ran a whole bunch of tests for immune issues, Celiac was part of them. At the time I was not eating gluten, but had been earlier this year quite a bit.
  13. JohnS
    Hi, I think I have Celiac for a few years, though blood tests were back and forth. I have cut out all gluten from my diet for several months and bloating still perisisted. I have even tested myself by adding gluten back in for a while and there was never any difference, I felt the same, bloating was the same too. But to be on the safe side I tended...
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