eerickso

Thanks. It's been a roller coaster lately. I was put on prednisone for the short term but I couldn't tolerate the side effects for more than 3 days. I'm hoping the longer term drug is able to kick in fast. I finally did have a relatively good day today and even got out into the sunshine for a couple of hours. Hoping this sticks and I don't do my normal one...

Well, had my colonoscopy today and the other boot dropped, so to speak. He thinks I have Chron's (there are discontinuous ulcerations and edema throughout the colon) althought it could be UC. Biopsies should help determine which, and I also have an order for a blood test. I'm so tired of the pain, nausea and fatigue and beyond exhausted from trying to...

Thanks. I'm still having a rough time and my doctor wants to also test for Chron's and ulcerative colitis. Nothing would surprise me at this point.

Makes sense based on what seems to have happened to me. Thanks!

Thank you all for the responses. Sometimes I just want to collapse and cry each time I'm dealing with something new. So much of the recovery feels like one strong forward, two steps back. I do know my iron - and probably lots of other things - is low. I plan to follow up with a nutritionist next week. Chris, thanks for sharing your experience. It sounds...

I've been feeling the same way. My brain fog seemed to lift pretty quickly but I've definitely had some tough days since going gluten-free over the last couple of weeks. I've now added dairy to my banned list and am starting to see a bit of improvement but it is all very gradual. I'm still getting cramping and still wake up in the middle of the night with...

Yesterday my tongue was feeling very swollen and almost like I had burned it. Today I have a blister under my tongue. I've had burning sensations over the last few weeks. I've been sticking to a gluten-free diet for almost two weeks. Do the current mouth and tongue issues mean that I'm somehow still being glutened?

Reading about the difficulty of going back on gluten after being gluten-free for a period of time, I'm wondering if this is what I've unknowingly done to myself. I've had vague / intermittent symptoms throughout my life. However, last December I went on a high protein diet that basically excluded grains, high carb veggies, dairy and fruit. I felt better than...

I'm about a week and a half into being gluten-free and I can tell that it's going to take awhile to start feeling like my old self again. The intestinal distress is still there but the urgent episodes have dissipated somewhat. The fatigue and nausea are still very much present and I've decided to stop trying to keep everything covered at work and just give...

Thanks. Today was rough. My morning was easier than many but I had more afternoon issues than normally and now am just exhausted and constantly nauseous. On the plus side my doctor called about my CT scan results and although there are a few things to watch nothing truly serious showed up. At least I'm *only* dealing with one disease so far. ;-) I'm off...

Thanks! Two things noted on my endoscopy that we're visible to the naked eye were a number of "mini ulcers" as well as scalloping of my intestines. After two and a half days gluten free I'm feeling better in general but still have a lot of intestinal distress particularly in the mornings and overnight. I guess it would be a bit much to expect my intestines...

Exactly! And that's even what I said to my doctor after seeing the blood test results. On the other hand, I am a little concerned about a comment he made about there having to be something else going on if the biopsies are negative since my blood work was so out of and there were some abnormalities noted on the endoscopy. In a way it would be nice to have...

Well, the endoscopy is behind me so now I just need to wait 2-3 weeks for the results. Either way the doctor said I had to start 100% gluten free today and I'm looking forward to finally starting to feel better. I had planned to change my diet once the testing was done anyway; I'm tired of being sick. As it was I couldn't bring myself to eat much more than...

Thanks! I'll be back with a full report. It's funny to be hoping so much for a clearly positive set of test results.

Thanks so much! I'm lucky to have been able to get the testing scheduled pretty quickly once I finally narrowed down my own search for a dignosis and went to the right doctor. I had actually started with my GP and then a neurologist (due to all the whacky neurological symptoms I was having) and it seemed like the latter wanted to test for everything *except...