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Veghead1234

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Veghead1234

  1. Veghead1234
    Very good points! I think her doc is knowledgeable, but I've had doctors in the past that "seem" to know what they're doing, and it turns out they don't at all! So I should definitely be checking up on him. I'll have the office send me over copies of the lab work. That would give me some peace of mind.
  2. Veghead1234
    That is an excellent question. I have seen people say under 20 is normal. I haven't seen the paperwork that comes back from the lab, and I'm not sure what the antibody is that they're measuring. I also wonder if the standard is different for children. Maybe that's why he says it should be under 4? I'm not even sure how to get that paperwork. Maybe I can ask...
  3. Veghead1234
    "So, could I cheat and eat something with gluten without vomiting? Yes. Is it a good idea to cheat once per month? Absolutely not. I wish I could recall the study but there was research out of Europe that revealed eating 1 cheat meal containing gluten once per month increased your mortality rate over the long term (several years) by 600%." Whoa! That...
  4. Veghead1234
    Yes, that's part of the reason I worry. Her first test of course was off the charts (way above 100, the doc said). Second test went to 17, third to 11. Doc says the normal range is 4 or less, and it seems to be taking so long to get there! It makes me wonder what she might be getting that's glutinous, or if it just takes a long time? It's already been a year...
  5. Veghead1234
    That's a relief to know, because I really have no way to know if my daughter has been glutened. I guess I can still feel OK eating there (but no more Dominoe's for her :-()
  6. Veghead1234
    When I first went gluten-free, I didn't even know malt came from barley. I bet there are a bunch of people out there that are the same way but haven't taken the time, or known, to find out. But it's not just malt, there are some of other sources that my research shows come from barley - smoke flavor and yeast extract. Obviously the Sprouts pamphlet is wrong...
  7. Veghead1234
    Thanks psawyer. I had to do a bunch of searching the other day to find that out after I read the Sprouts pamphlet. This is supposed to be an educational pamphlet for people trying to follow a gluten free diet, so it's pretty bad that they had such misinformation in there. It also says brown rice syrup and MSG might have gluten in them. These are common ingredients...
  8. Veghead1234
    It does if the product is labeled gluten free, so that is a step in the right direction. But only products labeled gluten free have to adhere to that. A can of beans or a condiment or other item is often not labeled gluten free and the hidden barley is still there.
  9. Veghead1234
    So sorry Red Robin made you sick! Since my daughter doesn't have symptoms, we really wouldn't be able to tell if they are contaminating her food. They tell us there's a separate fryer and a manager usually comes out to talk to us about her needs. Where was the location you got glutened? We are in Colorado. That's awesome about Five Guys, though! I didn...
  10. Veghead1234
    Thanks for the responses! I'll go look at "find me gluten free" before we try eating out again. It helps to know when people have already tried a place and NOT gotten sick so you can be pretty confident it's safe!
  11. Veghead1234
    I have noticed that people who have been gluten free for a long time don't seem worried about the barley issue. Maybe they forgot, or don't realize, how hard it is when you're new. We have been gluten free for 18 months, and for the first time ever the other day I found out "natural smoke flavoring" can come from barley. This is not disclosed on labels. Also...
  12. Veghead1234
    Desperatelady, your doc told you you could never eat out of your home? That's awfully harsh. Does that mean you can never take a vacation? Have dinner with at a friend's house? Traveling must be really difficult/impossible. Not to mention all the work of cooking every meal yourself. That seems like an impossible directive to follow.
  13. Veghead1234
    I have Turkey Hill ice cream in my freezer right now, and when I started reading your post I thought I'd have to get rid of it! But the Turkey Hill website itself says those ingredients aren't from wheat, and doesn't it have to be disclosed on the label if the are? I don't particularly like buying food with those types of ingredients anyway, but the "pure...
  14. Veghead1234
    I am new to this community, as my daughter was only recently diagnosed with celiac disease. The first thing I noticed when trying to go gluten free is that, although wheat has to be disclosed on product labels in the U.S., barley and rye don't. It makes it really hard to avoid those items, and allows hidden sources of gluten in our food. Sometimes I wonder...
  15. Veghead1234
    I thought I saw someone on this forum mention that they had posted a review about a restaurant where they got sick. If there is a site where celiacs can post whether or not they got sick from eating supposedly gluten-free food at a restaurant, that would be very helpful! And, of course, if people can post when they DON'T get sick, that's very helpful too...
  16. Veghead1234
    I was wondering if anyone has tried the Dominoe's gluten-free pizza recently and if they got sick? Their menu has a bunch of disclaimers about cross contamination, so it makes me wonder if they just don't try. I'm not sure why you'd offer a gluten-free pizza if celiacs can't eat it (do they think it's trendy?), so maybe the disclaimer is just something the...
  17. Veghead1234
    Red Robin also says they have a separate fryer for their fries. My daughter gets really excited to go there and get good fries! They put the gluten-free fries in a different color basket so the wait staff doesn't get them mixed up (and they don't put any salt on them, I'm not sure why). Have any of you gotten sick after eating the gluten-free stuff at Red...
  18. Veghead1234
    Thank you for the replies! It has been a challenge without symptoms, since we just don't know whether she's been "glutened". The hidden barley is one that really chaps my hide. It doesn't seem like a big inconvenience for the manufacturers to just list barley, you know? We don't have symptoms to let us know if something hidden is causing intestinal damage...
  19. Veghead1234
    I apologize if this has already been asked. I didn't see anything about it. My daughter was diagnosed with Celiac disease a year and a half ago (she was 9 at the time). She had no symptoms at all, other than that she wasn't growing. They suspected celiac after a blood test, then confirmed it with an intestinal biopsy. My question is, do any of you not...
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