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Johnny B

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  • Gender
    Male
  • Interests
    Fly fishing for trout and salmon, fly tying, and my springer spaniel bitch Tilly.

Johnny B's Achievements

  1. Hi there, as others are saying, please INSIST that blood screening is carried out, and request the HLA gene testing too. My son is now 14 and has been having the same complaints for three years. Even negative blood screening was obviously inconclusive for my son as he now has a positive biopsy result for Coeliac. Trouble is he has now lost so much weight...
  2. We don't get told what levels his blood tests are. They must think we're incapable of processing the information, despite the fact they know that my partner is a registered nurse, with a degree to her name, working with gastro patients. I spoke to the consultant on Monday. He's been avoiding speaking to me. He says that my son looks to have the "beginnings...
  3. Cyclinglady, hi there, and many thanks for taking the time to reply. They're more on top of his thyroid now. He's up to 100mq per day and his latest blood tests show that suits him. I must add, I have had these same symptoms for many years. They refused to test me for Coeliac as I have put on weight. I have done a lot of digging around asymptomatic...
  4. See.. what I would like to know is this.... If they blood tests are looking for antibodies, and there are antibodies present, how can this be an equivocal result? Do normal people without coeliac produce these antibodies? If not ( that's my understanding) then surely there is no such thing as a borderline test result? Surely, you either have this...
  5. Hi everyone, John from Scotland here. Our 14 yr old kid has been having serious tummy troubles for nigh on 3 years now and the poor mite has had the complete run around and misdiagnosis. He has had tummy pains with constant cycles of diarrhoea and constipation, gas and bloating. Every time we took him to a doctor we were told that it was in his head...
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