Piggottc

Well. He made it till 2am and grew up all the formula. We are taking him into e hospital first thing in the morning. We feel like we've run out of options here. He's lost so much weight and I can't just let him sit here and starve to death while we wait for him to heal. I'm so scared.

Hi Yes they did an endoscopy with biopsy and found no damage in his upper digestive area just in his intestinal tract. They are 100% sure he's got celiac. He's been on the formula for about an hour now and I sleeping soundly for the first time in weeks. Hoping for a restful night.

Well our doctor just called me.shes concerned that jack's gi tract is so damaged that he really can't absorb the amount of nutrients that he needs right now. So we are going to put in an ng tube again and feed him via pump overnight with peptamen jr . It's easier to absorb. She thinks that once he can get some nutrition in him he will start to heal more quickly...

Thanks so much for all the replies! All of this is making me feel much better. I started him off this morning with a little rice, banana and applesauce and he seems fine. I guess I don't need to stress so much about his calorie intake and just let him eat what he can tolerate right now.

Thanks for he fast reply. Jack was fine until about 1 year when we began feeding him food rather than formula. He's had a big tummy, diarrhea, failure to thrive since about 9-12 months. In August of this year he started having what I assumed was a chronic stomach bug bu he couldn't shake it. We wound up at children's hospital at Vanderbilt in Nashville for...

My son was diagnosed about two weeks ago with celiac after a lengthy hospital stay. We are feeding him a completely gluten free diet right now and he is still not gaining weight. He's having trouble eating more than 500-600 calories a day and often throws up. I just want to know if is is normal. My docs don't seem too concerned and have given him zofran...