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NanaV

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NanaV

  1. NanaV
    The server gave me gluten-free red pepper paste--mmmmm! I ate all of it. So tasty.
  2. NanaV
    I've started taking digestive enzymes before eating my dinner meals. Have you noticed it causes burping? Or should it reduce burping?
  3. NanaV
    So far, I'm feeling great after eating there! It was important to me to celebrate with my friend at her favorite restaurant. When I mentioned gluten-free to my friend, she knew what another gluten-free friend had eaten there before with success, so I ordered that! It was the bibimbap w/o soy sauce. And then the server seemed quite knowledgeable about gluten...
  4. NanaV
    Headed to a Korean/Japanese restaurant tonight, so I called just now to see what their gluten-free options might be. Uh oh. She didn't understand me at all. Not enough English fluency to understand gluten-free. So, what should I look for that would be safe?
  5. NanaV
    I've been gluten-free for almost 2 years now, and I react strongly when I get accidentally glutened. I simply cannot cause harm to my body in order to get a certain test to run positive. This is why I chose Enterolab.
  6. NanaV
    Ok. Did that. Negative.
  7. NanaV
    If you happened to have the following lab results for yourself, what conclusions would you draw and what actions might you take? B-1) Gluten Sensitivity Stool Panel Fecal Anti-gliadin IgA 30 Units (Normal Range is less than 10 Units) Fecal Anti-tissue Transglutaminase IgA 7 Units (Normal Range is less than 10 Units...
  8. NanaV
    Yes, there was au jus on the steak, some sort of pomegranate sauce with dried cherries. My plate looked just like everyone else's, but the server said, "Yours is gluten-free" when he served me. Good thought on the digestive enzyme. I ended up taking 2 magnesium tablets with a cup of ginger tea. I don't know if I have intestinal damage, but if I did...
  9. NanaV
    Cream anglaise was a vanilla sweetened white sauce they put on the dessert plate. I don't know how it's made. I've tested OK for dairy.
  10. NanaV
    I ate at a private club tonight where the chef knows I'm gluten-free. (I've been negative for celiac via blood tests but my symptoms resolve on a gluten-free diet.) I just got home, and I'm in pain. My belly is enormous. I look 4-5 months pregnant. I'm 5'4" and weigh 112#, so I'm not that big normally. What is going on? I didn't overeat, but I feel...
  11. NanaV
    Honestly, I don't think I can convince her to go gluten-free since the tests don't point to anything in particular. She is very aware that if she goes gluten-free, she may become MORE sensitive to gluten, and she doesn't want that to happen. Now I'm getting gene tested & we'll have a final answer.
  12. NanaV
    None of her celiac numbers were borderline positive. We don't have any other reasons her liver # is high. Doc recommended she take milk thistle for a month (and iron & Vit C & D) and be retested. Seems odd. I'm wondering if I should take her lab report over to her pediatrician for a traditional med approach now. This blood test doc practices natural...
  13. NanaV
    She did have the celiac tests, but the results all said negative so I didn't post them all. She had: deamidated gliadin abs, IgA & IgG, both 3 t-Transglutaminase IgA <2 tTG IgG <2 Endomysial antibody IgA negative
  14. NanaV
    Her tests mostly point to her NOT having celiac. I'm grateful. However, I'm wondering if her labs are showing a gluten sensitivity. Immunoglobulin A, Qn, Serum 224 mg/dL The range is 77-278. So, this isn't flagged on her lab report. Should I dismiss this data or is it signifying a gluten sensitivity? She did show a dozen other flags on her...
  15. NanaV
    Well, now I know. The freshly grilled asparagus & eggplant & peppers---it was too much temptation. And it was from a fine Italian place that was serving just 100 people, not like those buffets that sit all day with people mixing the tongs and breathing all over them. Yuck. I'm right now dealing with such widespread body aches that I fear I have...
  16. NanaV
    I've read that one can be tested for celiac via a stool sample, EVEN if one has been gluten-free for a while. Can this really be true?
  17. NanaV
    I guess I might get to this point. I went to a buffet last night and took my own food. But when I got there, the grilled veggies and the Greek salad looked so appetizing, I indulged. I only had a tiny reaction. I'm glad it wasn't a huge reaction but then I'm still surprised that mere vegetables can somehow have gluten lurking in there.
  18. NanaV
    Yes! This is my plan. I get my 15yo daughter's results this week. I'm feeling so impatient. And if she's negative, I'll test my 6yo daughter who just this week started telling me her tummy hurts frequently. She's dairy-free but not gluten-free. And it seems that being dairy-free inspires one to ingest large quantities of gluten. Husband is just honkey...
  19. NanaV
    Poor thing gave 5 vials this morning, but I'm hoping we'll get useable information! The doc added adrenal function tests to the list. Could that be related to celiac or gluten intolerance at all?
  20. NanaV
    She knows she reacts to milk proteins, and she has significant fatigue, almost daily. She has unexplained tummy pain now and then. She (and I) suspect that she reacts to gluten, but she hasn't wanted to go off of it. She has watched me go off gluten and become far more sensitive to it, so she'd like to avoid all that. AND she and her sister run a bakery....
  21. NanaV
    My only credential would be being a mom to 5 children w/various dietary needs, but I would say for sure, remain gluten-free. As far as helping him only have HIS snacks at school, you might want to express to the teacher(s) how much better he will behave (they'll probably care about this) if he only eats his own gluten-free snacks. It really does matter...
  22. NanaV
    I'm curious, too. I had an endo biopsy years ago, and the docs never told me that being gluten-free for a year would make any difference at all. Grrrr. I think they're wrong. Uninformed. And it leaves us gluten-free but undiagnosed.
  23. NanaV
    Based on my own trial and error, I think I can say that if I eat gluten, my fingers and wrists ache. They throb, actually. It's intermittent. I can't find any other cause. I'm 45 yrs old and in great health unless I eat gluten. This past week, I have had more random aches like the elbow and the ball of my foot, most noticeably when I'm sitting still....
  24. NanaV
    Thanks. I've had blood tests 2 years ago and they're still negative. And I just can't make myself ingest gluten for the test's sake.
  25. NanaV
    So does any of this show evidence of celiac to anyone? Anyone know anything about these test results at all?
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