Integrous
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Integrous
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I was diagnosed with celiac disease 12 years ago, so all of my kids get routine blood work to test for celiac disease. My 14-year-old daughter, who has no symptoms, got a <1.0 tTG IgA (normal is <15) and 166 total IgA (normal is 36 to 220). But, her tTG IgG was 6.8, which is "weakly positive" (normal is <5.99). I understand that a positive result...
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I respect your discipline and am grateful for the information & study (which I will print & read tonight). Wishing you continued good health.
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Thanks for sharing. My villi have improved dramatically, but I still have bad neuro symptoms that have damaged my family life & career, and nothing I do seems to fix the problem. And not many people understand. Sending good vibes your way.
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I would love some advice from celiac-knowledgeable folks. I have been vigilant in my efforts to be gluten free since my diagnosis with celiac disease 3 years ago. Although the results of my blood work have improved over time, I cannot get some of the numbers within acceptable range: /* DivTable.com */ .divTable{ display: table; width: 100%; ...
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Can anyone recommend a dietitian specializing in celiace disease in the Philadelphia, PA or Wilimgon, DE areas? Thanks
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After 15 months gluten free, my antibody numbers have finally normalized and a biopsy shows marked gut healing (from a Marsh 3C to "between 1 & 2"). However, I continue to have severe (crippling) brain fog and memory loss that have not improved, despite a clean bill of health from my neurologist. If you're aware of a doctor or practice in the U...
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Brain Fog Recovery.
Integrous replied to jpt2014's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
How is your brain fog? I am now 9 months gluten free and passed every neuro test out there, yet still have seen no improvement whatsoever in my brain fog... losing hope. Sending good vibes your way. -
Thanks everyone for the above replies. Lisa - Just before I went gluten-free in December 2013, my Anti Gliadin IgA was >250 and Anti-Gliadin IgG was 54.8. When tested last week, my Deamidated Gliadin IgA was 86 and Deamidated Gliadin IgG was 38. I'm not sure if they are the same tests or not. EMA test was positive in December and last week. With...
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I have been fanatically gluten free for over 7 months, yet my tTG IgA antibodies still score literally off the charts (i.e., the value always comes back "greater than 100"). My current celiac doctor admitted that he can't explain my results and has no suggestions on how to proceed other than to remain gluten free. I'd like to get a second opinion from a...
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ARCHIVED New Als-Type Symptoms After 6 Months Gluten Free?
Integrous posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I learned I had celiac disease in December 2013 and have been religiously gluten free since then (although my last blood test in March showed that my antibody levels were still over 200). I had a MRI, MRA & MRV of my brain in January which showed some age-appropriate, non-specific "white spots" on my brain, but no lesions or abnormalities. Five or six... -
ARCHIVED Genetic Testing For Children?
Integrous posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I was recently diagnosed with celiac disease. The tTg, EMA & DGP tests run on my four young daughters were negative, but I'd like to have them genetically tested so we know which, if any, to monitor going forward. Their pediatrician said the only reliable genetic test is the HLADQ2/HLADQ8 blood test. Is it true that HLADQ2/HLADQ8 are the only reliable... -
ARCHIVED Aricept For Celiac-Induced Neuro Symptoms?
Integrous replied to Integrous's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Thank you for your detailed response. I'm sorry that you went through that, but hearing your experience gives me hope. I'm scheduled to get a brain MRI shorlty to look for lesions, tumors, etc., so I'm praying that will come back clean and I can focus exclusively on celiac. One follow-up question: I don't undetrsand the significance of the "Marsh: 3C... -
ARCHIVED Aricept For Celiac-Induced Neuro Symptoms?
Integrous posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
I am a 37-year-old male. For the past 4 or 5 years, I have been experiencing slow but progressive memory loss. For the past 2 or 3 years, I have been experiencing a slow but progressive onset of what I can only describe as a haze or fog in my brain that prevents me from concentrating or understanding complex things. Over the past month, I’ve noticed p... -
ARCHIVED All These Symptoms Can’T Be Celiac, Can They?
Integrous replied to Integrous's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks for the reply. Am I correct that you and your son go back to thinking clearly once the gluten wears off? I'm looking for a glimmer of hope that my neuroligical effects will go away, as it is starting to affect my work and interactions with family/friends. -
ARCHIVED All These Symptoms Can’T Be Celiac, Can They?
Integrous posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I am a 37-year-old male. For the past 4 or 5 years, I have been experiencing slow but progressive memory loss. For the past 2 or 3 years, I have been experiencing a slow but progressive onset of what I can only describe as a haze or fog in my brain that prevents me from concentrating or understanding complex things. Over the past month, I’ve noticed s...