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BeckyB.

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by BeckyB.

  1. BeckyB.
    I am now certain I have been dealing with DH... I am on my third month being gluten-free and am finally seeing improvement in the rash, although it has not resolved entirely. I am also on low iodine diet (shooting for no, but am not as good at weeding this out as I am the gluten!). Finally sleeping at night again, seeing lesions healing up again (after an...
  2. BeckyB.
    Ted, I am extremely curious to see if any of the more experienced on the boards have had this same issue. I have also noticed joint pain that appears to be associated with an outbreak- but wasn't sure if it was just in my head or not and so I never mentioned it.... Wondering now if it COULD actually be related! Becky
  3. BeckyB.
    I've also got a few pairs of lightweight sweats that I wear a lot. And last summer- when things all flared... I learned the magic of the maxi skirt. Long, cotton joy... nothing touching my legs anywhere, and they go to the ankle so no one had to see the horror hiding beneath I wore them until I absolutely could not stand the cold anymore and have them on...
  4. BeckyB.
    one more things- I can barely tolerate "real" pants also. I spend most all of my time in yogo pants around the house. When I wear jeans, anywhere that is at all constrictive gets insanely itchy and will often have a break out. So you aren't alone in that either! I can't stand to wear socks that go over my ankles, and even then I take them off asap (and i...
  5. BeckyB.
    I got glutened about a week into my gluten-free diet (enough that I had GI issues)... and still noticed improvement after about four weeks. Some people have reported not noticing improvement for MUCH longer, but I think it has a lot to do with how quickly you can get every drop of gluten from your diet, as well as how long the disease/rash has run rampant...
  6. BeckyB.
    Well- last week by Weds I could see a HUGE improvement. I had no visible rash on my arms (still the phantom itching, but it was absolutely tolerable), the lesions on my legs were in the process of healing, the red underlying rash was so much less angry. I was actually able to say that I was definitely, definitely seeing the rewards of being gluten free after...
  7. BeckyB.
    Hey girl!!! Let me offer you hope, because when I wrote my original post I felt completely HOPELESS.... I am seeing improvement!!!!!! I am over four weeks gluten free (and three weeks on low/no iodine) and am finally seeing improvement!!! I still have the lesions, but they are beginning to heal, are much smaller and MUCH less "deep" (some of mine were...
  8. BeckyB.
    Thank you for the skin care tips. I am very fortunate that one of my best friends owns a handmade, natural soap company called Pure Hearts & Clean Hands. I have been using their soaps, laundry detergent, chap sticks, and lotions for a long time (all gluten free). I just added their shampoo bar which is also gluten free in place of my wheat containing...
  9. BeckyB.
    Thank you for the quick responses... And especially the detailed timeline. Ironically I find hope in the fact that you didn't notice much change until your second month. I am so desperate for relief that not seeing any signs of improvement does have me questioning everything. I have read the newbie thread and any pertinent posts 30 pages back into the DH...
  10. BeckyB.
    I have been reading through this forum voraciously... I am absolutely desperate as anyone who has DH would understand! My back story in as brief as possible: I have wondered for a few years if I could have a gluten sensitivity just due to the irregularity of my bowels and the occasional not-sure-if-I-am-going-to-make-it-home-from-the-restaurant-feeling...
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