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Kalokairi

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Everything posted by Kalokairi

  1. Kalokairi
    Thank you so much for your answers! I didn't go do the light therapy because I felt so weak from not sleeping and itching all the time, I will see if I'll go later. So far it's not better at all, but I decided to try to reduce the sals because I started reading about it and I had been eating some things that was very high in sals like coconut oil, curry spice...
  2. Kalokairi
    Ok, now I got an appointment for light therapy on Wednesday. I have been doing this three days per week for two months earlier for my "eczema" and it didn't help. I read somewhere that some people's DH have gotten worse from light therapy? I'm really doubting if I should go or not...if I don't cooperate with the dermatologist maybe he will get upset. I have...
  3. Kalokairi
    So I went to the dermatologist a few days ago, and as I thought he could not help me much. He suggested that the lesions, dark marks and blisters appeared because I scratch myself because I have atopic eczema....The problem is then that I DON'T scratch before the blisters and lesions appear!! Why would I? Before they appeared on my back for example I've never...
  4. Kalokairi
    Yes, it's only on prescription. But it's a good alternative to steroid creams and for me it really works on the eczema and dry parts of the skin, though I'm not sure if it works for the blisters/lesions yet.
  5. Kalokairi
    For several years I've had eczema on my eyelids and under my eyes. Not until now I realize that this has to do with DH. Normal steroid creams did not help, but then I heard of the cream Protopic with tacrolimus, and asked my dermatologist to prescribe it for me. In just a few days it clears up my very dry, red and itchy skin around the eyes and now also...
  6. Kalokairi
    Squirmingitch: Thanks a lot for the information about the endoscopy! I had no idea that the damage would be more patchy and that an endoscopy would be more or less useless. Then I no longer see any point with going to the dermatologist....but I've waited for this appointment since early December so at least it will be interesting to see what kind of knowledge...
  7. Kalokairi
    Thank you all for your kind words! It means so much for me to have someone to talk to about this! Actually I don't remember if I used steroid creams during the blood test, but maybe I did, but at least I was eating gluten by then. I read that the test for DH won't work if I'm not eating gluten, but then I rather not get the diagnosis, I'm so afraid of...
  8. Kalokairi
    I found this forum a couple of days ago and it has been a huge help in my struggle to find out that it's really DH that I have. I have some questions but I will tell you my story first: Two years ago I got a very itchy rash with lesions on my lower back, and I was told by a dermatologist that it was a reaction to hot weather since I was abroad. After...
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