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Quaylern

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Everything posted by Quaylern

  1. Quaylern
    The saliva test was ordered by a functional medicine practitioner that specializes in gluten intolerance and celiac.
  2. Quaylern
    I took my 6 year old daughter in to a pediatric gastroenterologist after having a positive saliva test. I checked her chart this morning and it shows her TtG was 10. Not much more explanation of the result so I emailed the doctor for an explanation. Her nurse wrote back and said 0-19 are in the normal range so 10 is normal. But when I looked at the mayo clinic...
  3. Quaylern
    I would have done the same thing. Ha! I was wondering if I should have clarified which state we were in
  4. Quaylern
    Thank you, unfortunately we're in Oregon so we'll be going to the children's hospital at Oregon Health Science University. I am hoping they are good. I would imagine so. It will be nice to be in knowledgable hands.
  5. Quaylern
    I just wanted to update after out appt with Izzy's normal doctor. He knows next to nothing about Celiac. He wanted to have his see an allergist. I asked him if that is really who we should go see. Then he decided to give us a referral to a pediatric gastroenterologist at OHSU. So at least I know we'll be in good hands with people that actually know what they...
  6. Quaylern
    Thank you! That's what I was wondering. I know even the endoscopy can give false negatives. I'm concerned because her normal doctor said he runs the test for people all the time and my test was the first he's seen come back positive (he's family practice and I went to a functional medicine doc for my test) so I wonder if he's running the right tests. Maybe...
  7. Quaylern
    I understand that the blood tests are less invasive but we already have a positive saliva test and my daughter is terrified of having her blood drawn. If the end result will be getting an ednoscopy, I would rather do that than to put her through the trama of both.
  8. Quaylern
    I have another question. I would prefer that we go straight to an endoscopy if the doctor is ok with that. All these tests are costly and I would rather avoid blood tests if the endoscopy is where we will end up. Is there any reason why skipping blood tests would be a bad idea? I know if the endoscopy comes back negative we may need to back track and do the...
  9. Quaylern
    I don't think my ex knows enough about it to know which tests are acceptable but he does know about the endoscopy because I mentioned it to him. My daughter's symptoms are stomach aches, constipation, eczema and a little bit of behavioral issues. I mostly wanted her tested because my test was positive.
  10. Quaylern
    I'm not sure what you would disagree with me in regards to the nurse. My point was that I would hope she would be able to look at the information on celiac and realize it is a serious issue and not claim that it is an "everything in moderation" deal.
  11. Quaylern
    He is the type that thinks he knows better than anyone else and thinks that I am overreacting. To make matters worse, his girlfriend is a nurse so she should know better! Anyway, if the endoscopy comes back negative, I will see if they will dx her NCGS which is what I'm at myself. I opted not to do further testing on myself for celiac but I guess that won...
  12. Quaylern
    Thank you for your response. I heard more back from her father and he refuses to removed gluten from her diet until she has a clear dx. He refuses to go with me to the doctor and I said it would be better of he would participate in her health care and he would be able to ask questions as he sees fit. But anyway, I'm going to go ahead with the endoscopy. I...
  13. Quaylern
    No, she is not eating gluten at my house but has been at school and her dad's so it is still in her system.
  14. Quaylern
    I took my daughter in to have the saliva test for gluten sensitivity and celiac after my test came back positive for gluten sensitivity. We did the Cyrex lava Array 1 Her results came back Secretory IgA 5.02 Gliadin IgA+IgM > 3.40 Transglutaminase IgA+IgM >3.10 The doctor said these are some of the highest test results that he's seen. He called...
  15. Quaylern
    I cut out gluten 3 1/2 weeks ago and I've had nausea and headaches off and on. The nausea is mild but it totally reminds me of morning sickness but I know I'm not pregnant. I'm hoping I'm getting close to the end of the headaches and nausea.
  16. Quaylern
    Thank you! I think I will try this. There are some foods that I would really like to reincorporate.
  17. Quaylern
    As far as food journals go, how are they typically done? I have cut out the foods that I reacted to but it significantly reduced the variety I can have. Would you suggest to start eating the foods again and closely monitor how I feel or reintroduce them more slowly? I appreciate your thoughts.
  18. Quaylern
    Also, I am aware of the difference between allergy and intolerance. I know I don't have an allergic reaction to them but since I am trying to heal my gut, I am avoiding foods that I reacted to.
  19. Quaylern
    Thanks for all the advice. I'll cut out all the tree nuts. So sad. I also reacted to peanuts so I am avoiding them as well. I'm hoping to be able to reintroduce most of the foods after abstaining from them for a while. I also stopped eating gluten at the same time. I'm hoping that as mug it heals, I can add back in many of these foods.
  20. Quaylern
    It does help when I take out the foods I reacted to but I was unsure about other nuts that weren't on the test either way it since I reacted to all the nuts that were tested if I should stay away from some that weren't on the test. I reacted to almonds, walnuts and pecans but pistachios and hazelnuts were not on the test. It's hard to stick to only the foods...
  21. Quaylern
    On my IgG food test, I reacted to almonds, walnuts and pecans. I got a +1 on those and I'm supposed to be cutting them out for a while so my gut can heal before attempting to reintroduce them. I took the test pretty literally and I have been eating pistachios and hazelnuts. I don't think pistachios and hazelnuts were included in the test so I'm starting to...
  22. Quaylern
    Thank you for your reply! I do have some glutamine at home and I will start taking it. I have another question if anyone can help me with it. I had a bunch of foods come up on my intolerance test. I am assuming this is because of a leaky guy caused by the gluten intolerence. They were foods I eat commonly, chicken, eggs, almonds, peanuts, beef, tuna, celery...
  23. Quaylern
    I got my tests back that show I'm gluten intolerent and I haven't had gluten since my DX on the 4th. My head is feeling clearer and I'm feeling better overall but I still have a lot of questions. I know is should do further testing for Celiac but for now, I think I'll stick with my gluten free diet because I don't want to go back on it for an endoscopy. I...
  24. Quaylern
    Thank you so much for this information. I found it very helpful. I have been on a gluten free diet for the last week and a half and I am ready feeling better. If I chose to ask my doctor for an ednoscopy, do I need to be eating gluten? I know I would need to for the blood tests but wasn't sure if it would be ok to do the endoscopy soon, while on a gluten...
  25. Quaylern
    Thank you so much for all the information. I appreciate your help!
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