mom2J

Hi, My daughter was diagnosed with Celiac disease about 4 months ago. At the time of diagnosis, her Tissue transglutenase antibody was 120. Her small bowel biopsy came back very + for celiac disease. Fast forward 4 months later and adherence to a strict gluten free diet, and her antibody level has only dropped to 100. So 20 "points" so to speak. When...

So today we met with a nutritionist that works in the Pediatric GI clinic where my daughter is being treated. That was a very informative and a helpful resource. We both came home with a thick Celiac disease and gluten free diet booklet. They also sent her home with a huge bag of Pediasure samples due to her being extremely low weight for her height. ...

This is good to hear, and thank you for warning me about the possibility of it not being immediate. It is so interesting that you mention the heat intolerance. My daughter has that as well. She has been intolerant to heat for as long as I can remember actually. I wonder if that is somehow related.

Hi all! So her pediatric GI called with the biopsy results. They confirm Celiac disease. The pathology report said it was graded Marsh 3b. Poor girl. Well now we know why she has been feeling so awful and have an answer. She also had gastric inflammation, but no presence of H. pylori or other microbes. So he is prescribing some meds for that. Anyone...

Thanks again to all of you who have replied. All very good information to be aware of. As far as why the Dr. gave permission to go gluten free, was because previously they asked us to keep her on her normal, gluten containing diet so as to not affect the test/biopsy results. It was the day of the biopsy he said we could do gluten free now. And yes...

Thank you for the replies. I appreciate it. No she has not had any blood work to check for nutrient levels. She has had a couple of complete blood count tests the last few weeks to follow an abnormally low WBC count as well as a high lymphocyte count. In doing these tests, we do know that she does not have anemia. Her lymphocyte count came back down to...

Hi, So this is my very first post on this forum. I am anxiously awaiting the results of my daughters biopsy. Here's a little history, and I do have one question. She became "sick" with vague, non specific symptoms almost a year ago. Episodes of feeling awful (fatigue, dizzy, nausea, headache and a couple of times throwing up with no clear understanding...