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jmarie

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  1. I have been gluten-free since a biopsy diagnosis last April, but I have had a chronic sinus infection since October . I have them every year, and now I have a consultation appt with a ENT to determine whether I need surgery. When I googled "chronic sinusitis celiac disease", I immediately came to a site that listed celiac as a predisposition to chronic...
  2. My issue was, of course, not with people who have not been "officially" diagnosed, since my understanding is that many diagnoses stem solely from a positive response to a gluten-free diet. It just doesn't make any sense that I would have been offended by people who are here for any kind of support relative to survival. My offense stemmed from someone...
  3. I know this isn't going to be a popular thing to say, but since you brought it up, I am kind of annoyed at the volume of people on this message board that don't have celiac disease. What are you doing here? If you just want to be gluten-free, great, good for you. It's probably a healthy choice. But isn't this "Celiac.com" for people with a disease...
  4. I don't trust Amy's. It says "Gluten Free" on the front but in tiny, tiny letters on the back it has a message "for those with food allergies" that the food shares a facility with wheat products, among other things. Am I wrong to fear them? I assume that if it's dangerous for people with allergies, it's dangerous for me!
  5. Here's my rant: Products that list "gluten-free" on the front of the package in big, friendly letters, prompting me to buy the product. Later, I notice little <i>tiny, tiny</i> letters that say "For those with food allergies, this product was manufactured in the same plant with products containing <i>wheat</i>. When I was...
  6. Just wondering... It's not a story people often want to hear, but I am interested in how this all came about for folks. When I was 17, I had a sudden systemic inflammation which landed me in the ER. They kept testing for different diseases that my mom had - lupus, sjogren's syndrome - but all the bloodwork would show was that I had "some sort of active...
  7. Hi there, My symptoms have improved quite a bit - that is, I was spending hours each day vomiting or curled up on the floor trying to will myself to a standing position, and I am definitely not in that position now. However, I still have stomach distention, exhaustion, foggy-headedness and digestive distress. My joints occasionally swell up. Does...
  8. Hi there. I have been gluten-free for six months, and I notice that symptoms are a little tiny bit better each month. It's been a long month, and according to my gi, my intestines are still quite extensively damaged. I had been sick for 12 years, though, so I was really quite sick by the time I was diagnosed. Maybe if you're diagnosed early enough...
  9. Diagnosed at 29 after 12 years of severe arthritis and anemia. At 17, they diagnosed me with "autoimmune disorder - unspecified", and they treated just symptoms for years. I assumed my stomach distress was psychosomatic/stress-related until it became so severe that I was vomiting after I ate anything. It would have been nice to be diagnosed earlier, but...
  10. Hi again. Thanks for the responses. While my diet and (I believe) my skin products are gluten-free, my household is not. My husband and daughters (7 & 9) all eat quite a bit of gluten and I do all the cooking. I wash my hands frequently, but my husband suggested that maybe it's getting in through my skin (is that possible?!). The husband has agreed...
  11. I just had a 2nd endoscopy (6 month follow-up). Last time, my dr said that my intestines had atophied & were just really dysfunctional. This time, he just said "Your celiac's is unresolved by your diet". At which point, of course, I burst into tears. They all looked confused that I would be so upset, but I feel like I put forth a lot of effort for...
  12. I was diagnosed with celiac disease after a biopsy last April (doctor during endoscopy: "Whoa - That's celiac disease!") & I have been trying my hardest to be gluten-free ever since. I have been arthritic and anemic with periodic systemic inflammations since I was 17 (now 29), but last winter was SEVERE gastrointestinal pain, to the point of complete...
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