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afitgirl

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Everything posted by afitgirl

  1. afitgirl
    Hi guys. I'm less of a spazzzz about it now... I think. I appreciate all the time and thought so many of you put into helping me cope one week into this diagnoses. Now I found myself thinking, this is a huge deal!! Wait, maybe this isn't a big deal after all. I'm confused. Is it what you make of it? The food at home is not a problem for...
  2. afitgirl
    Well it was normal red blood. Not platelets then.
  3. afitgirl
    Do low antibodies mean you aren't eating gluten? Or "too much gluten" to do harm? Does it mean your intestines are healed or "healed enough."
  4. afitgirl
    This is a huge issue for me. I don't know what is okay and what isn't? I'm not worried about whole foods but how do I know what products are okay? I was excited to discover loads of stuff labeled gluten free and although I cried at the store, I at least brought home stuff to try. But now I read that nothing is safe? How do I really know? Calling...
  5. afitgirl
    Do I need a diagnoses? I feel like my scores and this forums' opinion is my diagnoses, right? I'm still seeing the GI, but won't they tell me what you do?
  6. afitgirl
    I had a postive on endomysial Antibody IGA and a TTG score of 17. The blood transfusion came out of nowhere! I was on day 1 of my period. (Which I bleed through a tampon in less than an hour for 2 full days at least and have this cycle every 17-23 days). Hyper and excited to teach a new boot camp class in that area and suddenly got dizzy and dropped...
  7. afitgirl
    I'm sorry if I offended you.. No, I just don't understand it all yet and I'm really scared. Like really, really, really scared. It is confusing to me because I read about "being gluten" and horrible damage secretly going on in the body. It would seem that everyone would live in fear. Always. I'm just trying to find out what is true. I'm fine...
  8. afitgirl
    So 19 days probably mostly dead then. Is it possible I'm producing antibodies to their blood that could show up on the test? My doctors were so confident that the anemia was heavy period related. When I didn't have a period (pregnancy and breast feeding) my numbers were fine. I'm the one that pleaded for this test for peace of mind. I do need...
  9. afitgirl
    I'm sure to you guys its obvious I'm in denial. But I'm looking for any hope I can. I felt great! Amazing and then one day dropped to the ground. No iron, low hemos were my problem. I do have extremely heavy periods (think: crime scene) that they said were the problem. I needed two bags of blood (which I assume were from two different donors) ...
  10. afitgirl
    Is it okay to wait? I imagine my intestines are exploding right now!~!!!!!! I feel like the uterine ablation and recovery would me more important?
  11. afitgirl
    Is this not a death sentence? Isn't or complications of it slowly killing me? I am so confused how I'm allowed to take it slow and learn as I go and that be okay? Don't I have to stop now and get serious or else??? I'm appreciate your help. I really really really do. I'm just so blind slighted with it all. I will get my kids tested. They are...
  12. afitgirl
    I'm confused at when to start. I have positive blood result (big panel) and set up to see a GI (referred today). I'm trying to change my big food items to gluten-free already because I'm know I'm still getting gluten from a ton of other sources. I'm scanning things with an app but not overly reading labels. I live in a totally glutened house right...
  13. afitgirl
    I guess having three young kids I feel like If I make a mistake I could just die. I also wonder how people have blind faith that it's "working?" How do I know without real symptoms that I wouldn't just keel over. It's hard. I have soooo much energy. I love love life! I teach 25 fitness classes a month. I swear I feel soooo healthy aside from...
  14. afitgirl
    You're right, that is not what I want to hear. I just don't understand it to be true. I feel like it has to be impossible for people to be 100% all the time. There has to be errors in there just living life. And then I don't understand how they are alive. Honestly, I don't. I would think I will need to be in a bubble forever. People that eat...
  15. afitgirl
    I'm new and still very bitter. I am trying to understand as much as I can. I have read conflicting information about cross contamination. I'm pretty sure I can make gluten free choices for food. I'm not overly worried about that (although I am sad). But I don't understand the cross-contamination thing at all. People take such different approaches...
  16. afitgirl
    Thank you!! Kareng- I didn't know that. I am so new that I truly believed that you could be a little celiac. I thought perhaps my body was "tougher" maybe since my symptoms seem to be more silent (but apparently deadly ) I see my doctor Thursday after just hearing this results Friday. I'm having a hard time. Really hard time adjusting. I know...
  17. afitgirl
    Wow, thank you you guys for all your support. It hasn't even been a 5 days for me since getting the blood work so maybe each day will get better? I just hope I do feel better. I'm afraid that I wouldn't see a shift in how I feel (more silent) and then I will feel like it's all for nothing. I think the problem is my past as centered around food. ...
  18. afitgirl
    0-3- neg 4-10 weak pos 10+ pos But I'm wondering if 17 really isn't that high....Perhaps people have....400?
  19. afitgirl
    Yes, you are right. But I think that is my problem. I don't feel sick. I have so much energy. I hate to sleep because I want to be active constantly. I exercise and live life fully. I thrive with a full plate. I had a extreme (crime scene type) period every 20 days. This has most certainly contributed to the anemia. BUT other than that I felt...
  20. afitgirl
    I have looked everywhere for this. I'm new, scared and trying to understand whatever I can. It seems that this TTG thing is the most important in the blood screening? Why can't I find random numbers of people? I want to compare and find where I fit in? Or is that denial? I was a 17. I want to see 35, 100, 11, etc. The lower the score the better...
  21. afitgirl
    Thank you! Thank you so much for your replies. I'm so lonely and I walk around in a fog. I think I feel worse emotionally everyday. I do plan on getting my children tested but I wanted to wait a bit until I was fully diagnosed. I don't even have many GI symptoms! I most likely wouldn't have known for years. My husband is truly supportive and...
  22. afitgirl
    I don't even know where to start. I don't even know if I have celiacs truly. I'm at a loss. I'm a teacher, private personal trainer with specialization in fitness nutrition, and teach 25 fitness classes a month. I'm a healthy sick person, I guess. I've know I had low iron for years. I didn't realize it meant...dealthy low. 3 weeks ago I dropped...
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