BeautifulSkunk

Still no response from the doctor. I'm trying to give the benefit of the doubt here and am believing that he is just taking his time reviewing all of her chart information.

They've treated her repeatedly with prednisone. Additionally, she has taken, first, Pentasa and, currently, Imuran. Neither the Pentasa nor the Imuran has worked. Only the prednisone. But she can't stay on that continually.

At the time of the biopsies they had not been treating the colitis.

Well...the doctor didn't call me today like he said he would but I know that they can get busy. In the mean time, I have another question. One of the appalling things we found out when things first came to a head in 2011 was that my daughter, who was seven at the time, thought that a "normal" stool was diarrhea. I never paid much attention to her...

Thank you for the advice/encouragement. I'll update after I've talked with her doctor.

Yes! I can hardly wait to talk to her present gastroenterologist tomorrow. I've been pretty consumed with these lab papers this weekend. I feel like I've learned a ton. I can only hope that I'm not overlooking something.

She had a biopsy done at this same time and it seemed to contain high markers for celiac as well. For instance, the biopsy of the duodenum was positive for villous atrophy and increased epithelial lymphocytes. Since requesting copies of this lab work...(Did I mention that this lab and histopathology was from 2011?) I have taken her off of gluten. She...

My ten year old daughter has been struggling with GI issues since 2011. For the first two years, we were told that she had ulcerative colitis. We had a change of doctors within the same clinic and the new one advised us that she had Crohn's (according to her medical file). Ugh! We've recently moved to a new clinic, citing incompetence at the old one, and...