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Mommabearof3

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Everything posted by Mommabearof3

  1. Mommabearof3
    Just got a message from the Dr. who did the scopes and she said all the pathology came back negative for celiac, chrohn's etc. Only the reflux damage was confirmed, and they told me to continue on the acid reflux meds. I don't have a copy of the pathology yet, but I'll be getting it just to double check. Back to square one. Liz
  2. Mommabearof3
    I got some preliminary results from my endoscopy in my digital health account. The pathology isn't back yet, but the doctor's report is in. I was foggy, but I don't remember her mentioning the duodenal diverticulum, just the reflux esophagitis. A medium-sized diverticulum was found in the first part of the duodenum. Impression: - LA Grade A...
  3. Mommabearof3
    Thanks. That is what I'm debating - Just going gluten and dairy free, see if I get improvements, and go from there or full out elimination diet. I'm thinking I could do a good 6 to 8 weeks gluten free and see if I get any improvement, if not then try an elimination diet. I think gluten free would be the easier option to try first, with little to no prepackaged...
  4. Mommabearof3
    I see a NP for my regular appointments for GI stuff, but had an actual real honest to goodness GI DR or my endo and colonoscopy yesterday, so I got to pick her brain a bit before and after the procedures. They took a large number of biopsies from everywhere, so I'm satisfied with that. The only visual evidence she saw of anything wrong is damage to my...
  5. Mommabearof3
    Thanks for the info, it looks like I have some stuff to look up so I can understand igg and the immune system more. Yes, I remember the boy in the plastic bubble and I've often joked that I needed to be in one because I catch almost everything. I even had the chicken pox twice because the first time I didn't build up enough of an immunity to it. I can...
  6. Mommabearof3
    Thanks for that info. I have multiple sinus infections, ear infections, severe bronchitis requiring antibiotics, steroids and nebulizer treatments throughout the year. I saw an ent a month ago because I've had multiple ear infections in the last 2 to 3 years after 25 years of none and he said it was caused by allergies but did not offer any testing, just...
  7. Mommabearof3
    It is frustrating. I thought I was waiting for more results to load to my online account, because they were were also suposed to run a free T4 which they apparently didn't. They only ran three celiac tests (the two deaminated iga and igg ones andthe tissue trans...whatever that long word is...iga) and a total iga. IGA came back at 332, with the range being...
  8. Mommabearof3
    I can't wait till testing is over. My bloods came back negative, but it turns out they didn't run a full panel so the scope is my last chance for a diagnosis at this point. I don't care even if it comes back negative, the first thing I'm doing is cutting a lot of crap, including gluten, from my diet to try to improve my stomach. I'm in so much pain today...
  9. Mommabearof3
    Thank you again! Its odd that it didn't come back with the TSH, I'll just have to wait for it to show up or for the Dr. to call about it. Liz
  10. Mommabearof3
    One more thing I just noticed with my labs, my Free T4 test is not listed. My TSH is there, and is 1.27 (ref .27 to 4.2) but not Free T4. Now I'm wondering if it came back flagged and wasn't released to my record yet. Liz
  11. Mommabearof3
    Thank you. I am going to try the gluten-free diet after the endoscope to see if I get any improvement. In the past I have always felt my best when I've been on Weight Watchers and have cut back significantly on my carb intake and increased my intake of natural foods like lean chicken, fruits, veggies, salad etc. Its not just the digestive issues, its the...
  12. Mommabearof3
    Finally got everything back today. Everything they ran was negative or within acceptable ranges. We'll see what the colonoscopy and endoscope show on the 8th, but I have no hope of getting to the bottom of what is wrong with me. I known this is just going to turn into another case of "you are fine". Liz
  13. Mommabearof3
    I haven't had any other labs come back yet. I did find the order she put in, and there are quite a few things being tested for, but I don't know how long they typically take. Here is what was ordered... Stool studies: C. Diff, Giardia, Stool Culture, Fecal leuk, O&P, sudan Labs: CBC/diff, CMP, celiac ab panel, Sed Rate, CRPL, TSH, Free...
  14. Mommabearof3
    Finally got to the lab to get everything drawn. 5 vials plus three separate stool samples. I apologized to the girl repeatedly, I was sooooooo embarrassed handing that over. She was like don't worry about it, I was mortified anyway. I just checked my online account and my CBC is back already. I don't see anything out of the ordinary, everything...
  15. Mommabearof3
    I will definitely post them when I get them, especially if I don't understand them! I'm finding that it doesn't seem to matter when I eat anymore. I wake up everyday at this point with pain and running to the bathroom and I go to bed in pain almost every night. The wait is frustrating, but I've made it this long, what's a couple of more weeks right? ...
  16. Mommabearof3
    Yes, still having gluten. The only diet changes I have tried in the past few months was an extremely low fat diet when my GP thought it was my gallbladder giving me trouble. My symptoms didn't improve and my gallbladder scan came back fine, so I went back to regular fat amounts after only a week of eating that way. I still had gluten containing foods even...
  17. Mommabearof3
    Finally saw the GI, who wasn't an MD but PA, but whatever at this point. We just got home, it's 10 pm, and it was a long day at the hospital for all of us. She was pretty good, listened to everything I had to say and she didn't really give any opinions, just said lets run everything and see what comes up. She did specifically mention celiac or bacterial...
  18. Mommabearof3
    Thanks for checking on me. I didn't have any more bleeding today so I didn't go to the ER. I tried to call the GI office twice to see if they could get me in earlier due to the bleeding, but I held for over 20 minutes each time, and ended up giving up because no one picked up. I had a lot of work to do today (I'm a real estate agent) and had phone calls...
  19. Mommabearof3
    Thank you I know sometimes you just have to go, but the anxiety I have about it is through the roof. I'm fine with regular doctor appointments, it is just ER visits that I freak out about. The last three years have been really really really tough emotionally and physically. I would love to just have ONE thing come back with an easy fix. I don't...
  20. Mommabearof3
    Thanks all. If it is still going on tomorrow I will go in to the ER associated with my OBGYN. It's part of the same system that the GI is part of as well. I'll have to have my best friend take me, my husband is at work until Tuesday night. I still had D this morning with some blood, no where near as bad as last night, and am still not feeling right as...
  21. Mommabearof3
    I meant to come back the other day to update you all but we had a very upsetting appointment Thursday with my daughter at the pediatric orthopedist. Her pediatrician had diagnosed her with suspected scoliosis and refered us, with a 7 degree curve. After x-rays at the ortho, it turns out she has a 25 degree curve in her thoracic spine that no one knew about...
  22. Mommabearof3
    My appointment isn't until 1:30 in the afternoon so I don't think they will do any type of testing that day. Plus I need a colonoscopy as well, and I want to see if they are able to just do everything at the same time. I do not react well to anesthesia, and would rather only be under once, not twice. When I had my surgery last year I threw up for over...
  23. Mommabearof3
    Thank you for the tips! I have a lot to learn. Its only my initial evaluation. I've had the appointment since end of spring, it takes months to get in with them, and I have to drive 2.5 hours to get there. My GP was no help, I was having attacks pretty bad (after eating) and she thought it was my gallbladder and sent me for an ultrasound that was...
  24. Mommabearof3
    I'm definitely reacting to something. Whether the tests come back positive or not, once the GI is done testing, I'm off of gluten ASAP to try to calm everything down. I have reactions to a lot of environmental stuff (cats, dogs, pollen, mold, certain metals, insect bites leave giant welts and scars, certain dish soaps will cause my hands to crack and bleed...
  25. Mommabearof3
    My GI appointment is next week on the 14th. So I'm obviously still eating gluten as much as I can tolerate, but it is quickly becoming an issue for me to force myself to eat foods that are making me feel sicker! We went out on Sunday, packed lunches in a cooler as it was an all day event. I had a sandwich on a roll around 10 am. By 10:30 I was laying...
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