the2ofus

Thanks Mariann, I'm going to keep a posible gluten intolerance in the back of my mind as we try this new diet. I am actually looking to take note what items we are eating say gluten free for future referance. I know my daughter had a soy pudding and a glass of soy smoothie and then had diarrhae a couple hours later. This is going to be a very long process...

Hi Mariann I was reading you post in the other thread. I posted something new so it wasn't lost in all the others. You mentioned that your son does not have the gene but is gluten intolerant. Has he had any allergy testing to find this out? I just started the Irritable Bowel Syndrome diet a few days ago. On this I am eating gluten. Not anything...

Hi Marsha, If you are going to have the blood test done do it with prometheus labs in California. They are supposed to be the most accurate in the country. If you order the test as a comprehensive celiac test they will do a gene test if you other results are negative. Then you would atleast know if it is a possibility. My insurance company approved...

Hi everyone, I was very impressed with Prometheus. I had my blood drawn on Monday. Airborne Express picked it up at 6:00PM. It was delivered on Tuesday morning, by thursday afternoon my doctor was faxed the results. My numbers were all low and the HLA DQ2 and 8 genes are NOT present. I was thrilled to hear this. Marianne, what have you heard...

Thanks everyone for answering me. I needed some positive feed back. Lisa, did the doctor take your prometheus kit for real? My doctor was in the computer at prometheus but when I told her I wanted to use them she couldn't understand why I didn't want to use quest. I heard that quest doesn't do the test accurately all the time. I hope prometheus does...

I just sent my blood work off to Prometheus in California this morning. My doctor is waiting till I get that back to schedule my endoscopy. In all my reseach I am finding out that there is more wrong with me than I originally thought. When she does the endoscopy she is going to check for esophegal problems. Are swallowing problems common in Celiac?...

Hi Hapi2bgf I have had dry skin problems for years, tried evey lotion there was. I get cracked bleeding hands for most of the year. It only subsides deep in the summer. A friend sells avon and told me to try something and it worked!! It's called moisture theorpy. I put it on several times a day and heavy at night. I still have a little dry skin but...

Well, I have my prometheus kit and my authorization number from my insurance company. I can't believe they actually approved it. I can't wait to have my test done. I haven't removed any gluten from my diet yet but I'm going to wait another week to take the test. In this week I'm going to pig out on pasta etc. I just hope the test is accurate. Thanks...

Hi Mariann, Thanks for your information. Half of my battle is seeming to be getting the doctor to call the insurance company. When I spoke with the woman at the insurance company she asked me if there was a local lab that could do this. I told her there is but they don't do it with the same amount of accuracy. I since found out from quest that they don...

I am having a hard time getting my doctor and insurance company together with me on having my blood work done at Prometheus labs in california. I had heard from several people that this was the best lab for this testing. Does anyone know if Quest is accurate? Quest is covered by my insurance and the other one isn't unless they approve it ahead of time...

I am going to the doctor in a couple of days and wanted to know if when I have my blood work done is there one lab in the country better than another. I had heard that some of them do not do the celiac panel properly and others do a vast quantity of this test, plus the gene test. Does anyone know where I should have my blood sent. Will a local lab draw...

Hi Nicole's Mom sorry for the double answer, I'm very tired doing this research and didn't realize there was a second page to this post. Mariann, You said that enterolab sends out their test. Is this for the gene only or do they send out the whole celiac stool panel? If it is the whole panel then can we go directly to this other lab with the sample...

Hi Nicole's Mom, My doesn't get regular sick that often, she had strep twice this school year and now she has a congested cough that she's taking antibiotics for. She gets the diarrhea 2-6 days a week. She doesn't complain much anymore. I think she is naucious and has a bit of an upset stomach daily, I know I do. It has become so common place that unless...

Hi Nicoles Mom, My daughter is always saying she doesn't feel well. As far as doctor visit sick, she has had strep a couple times this winter and is now taking antibiotics for a respitory infection. I don't know yet what else can cause the readings to be high. One of the pediatricians in the group finally seems to be listening to me and has offered to...

Hi Mariann You say that in Europe they diagnose in three weeks. What tests are they using there? Do they use the Enterolab or is in blood tests. If it is blood tests do you know if they are different than the U S? Or is it that the doctors just believe the patients symptoms and head right for Celiac? Robin