Jump to content

the2ofus

Advanced Members
 View Profile  See their activity

  • Posts

    22

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by the2ofus

  1. the2ofus
    Thanks Mariann, I'm going to keep a posible gluten intolerance in the back of my mind as we try this new diet. I am actually looking to take note what items we are eating say gluten free for future referance. I know my daughter had a soy pudding and a glass of soy smoothie and then had diarrhae a couple hours later. This is going to be a very long process...
  2. the2ofus
    Hi Mariann I was reading you post in the other thread. I posted something new so it wasn't lost in all the others. You mentioned that your son does not have the gene but is gluten intolerant. Has he had any allergy testing to find this out? I just started the Irritable Bowel Syndrome diet a few days ago. On this I am eating gluten. Not anything...
  3. the2ofus
    Hi Marsha, If you are going to have the blood test done do it with prometheus labs in California. They are supposed to be the most accurate in the country. If you order the test as a comprehensive celiac test they will do a gene test if you other results are negative. Then you would atleast know if it is a possibility. My insurance company approved...
  4. the2ofus
    Hi everyone, I was very impressed with Prometheus. I had my blood drawn on Monday. Airborne Express picked it up at 6:00PM. It was delivered on Tuesday morning, by thursday afternoon my doctor was faxed the results. My numbers were all low and the HLA DQ2 and 8 genes are NOT present. I was thrilled to hear this. Marianne, what have you heard...
  5. the2ofus
    Thanks everyone for answering me. I needed some positive feed back. Lisa, did the doctor take your prometheus kit for real? My doctor was in the computer at prometheus but when I told her I wanted to use them she couldn't understand why I didn't want to use quest. I heard that quest doesn't do the test accurately all the time. I hope prometheus does...
  6. the2ofus
    I just sent my blood work off to Prometheus in California this morning. My doctor is waiting till I get that back to schedule my endoscopy. In all my reseach I am finding out that there is more wrong with me than I originally thought. When she does the endoscopy she is going to check for esophegal problems. Are swallowing problems common in Celiac?...
  7. the2ofus
    Hi Hapi2bgf I have had dry skin problems for years, tried evey lotion there was. I get cracked bleeding hands for most of the year. It only subsides deep in the summer. A friend sells avon and told me to try something and it worked!! It's called moisture theorpy. I put it on several times a day and heavy at night. I still have a little dry skin but...
  8. the2ofus
    Well, I have my prometheus kit and my authorization number from my insurance company. I can't believe they actually approved it. I can't wait to have my test done. I haven't removed any gluten from my diet yet but I'm going to wait another week to take the test. In this week I'm going to pig out on pasta etc. I just hope the test is accurate. Thanks...
  9. the2ofus
    Hi Mariann, Thanks for your information. Half of my battle is seeming to be getting the doctor to call the insurance company. When I spoke with the woman at the insurance company she asked me if there was a local lab that could do this. I told her there is but they don't do it with the same amount of accuracy. I since found out from quest that they don...
  10. the2ofus
    I am having a hard time getting my doctor and insurance company together with me on having my blood work done at Prometheus labs in california. I had heard from several people that this was the best lab for this testing. Does anyone know if Quest is accurate? Quest is covered by my insurance and the other one isn't unless they approve it ahead of time...
  11. the2ofus
    I am going to the doctor in a couple of days and wanted to know if when I have my blood work done is there one lab in the country better than another. I had heard that some of them do not do the celiac panel properly and others do a vast quantity of this test, plus the gene test. Does anyone know where I should have my blood sent. Will a local lab draw...
  12. the2ofus
    Hi Nicole's Mom sorry for the double answer, I'm very tired doing this research and didn't realize there was a second page to this post. Mariann, You said that enterolab sends out their test. Is this for the gene only or do they send out the whole celiac stool panel? If it is the whole panel then can we go directly to this other lab with the sample...
  13. the2ofus
    Hi Nicole's Mom, My doesn't get regular sick that often, she had strep twice this school year and now she has a congested cough that she's taking antibiotics for. She gets the diarrhea 2-6 days a week. She doesn't complain much anymore. I think she is naucious and has a bit of an upset stomach daily, I know I do. It has become so common place that unless...
  14. the2ofus
    Hi Nicoles Mom, My daughter is always saying she doesn't feel well. As far as doctor visit sick, she has had strep a couple times this winter and is now taking antibiotics for a respitory infection. I don't know yet what else can cause the readings to be high. One of the pediatricians in the group finally seems to be listening to me and has offered to...
  15. the2ofus
    Hi Mariann You say that in Europe they diagnose in three weeks. What tests are they using there? Do they use the Enterolab or is in blood tests. If it is blood tests do you know if they are different than the U S? Or is it that the doctors just believe the patients symptoms and head right for Celiac? Robin
  16. the2ofus
    Hi Mariann I completely understand about the insurance issue. My insurance did pay for the blood work for my daughter. I don't think the doctor ordered a full celiac screening. Without all the parts of the test what good is it. He checked her IGG and it was 122, normal is under 30. He also checked her IGA but I have no numbers just a negative. I'm...
  17. the2ofus
    Hi Shirley, Thanks for your response. Dr. Fines test just sounds to good to be true. With what I have read about the blood and biopsy tests I don't want to do either one. Have you heard of anyone getting results from the stool test that turned out to be inaccurate? Thanks Robin
  18. the2ofus
    I am getting close to ordering my stool test from Enterolab but wanted to know if they are the only lab that does this. Does any one know of another? I understand they are the ones who developed this one sample test put if it works so well how come no other lab uses it. Why are the doctors so skeptical if it? It is an expensive test and I don't want to...
  19. the2ofus
    Hi Dewey, I have a questions. I was thinking of ordering the stool test from Enterolab and wanted to know why you think it is inaccurate. I had the same thought but just assumed that was because anyone who was negative, would not be spending time on the celiac web site. I have emailed Enterolab two times to ask some questions and have not gotten a response...
  20. the2ofus
    Get ready my story is pretty long. I have been reading everything in this section and I have symptoms I didn't know I had. I can remember way back as a kid always having a stomach ache. I was a kid so I never thought twice about it. As I got older they would come and go but I didn't know it wasn't normal. I am 39 now, I had my son at 22 and the next...
  21. the2ofus
    My daughter has been diagnosed with Lactose Intolerance and Irritable Bowel Syndrom. These are both symptoms of Celiac. She had the blood test and it came back as a false positive. This means the IGG were irregular but the IGA and IGE were negative. Does anyone know exactly what this means. The doctor said it means she does not have celiac. Could he...
  22. the2ofus
    I hope you have some information for me. My daughter had colic when she was a baby, Iron free formula, soy formula, colic drops and up all night. As she grew it subsided. Several years ago I suspected she was lactose intolerant. We took her for the breathing test at the hospital and her readings came back that she was border line intolerant. 10 minutes...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.