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girlulu

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Latest Celiac Disease News & Research:

Everything posted by girlulu

  1. girlulu
    OK, Thanks for all the responses. I will get the endoscopy. It wasn't the endoscopy that I was worried about it's the pill cam. The dr. said there's a low chance it could cause bowel obstruction. But knowledge in my case is important and this will give me more of that. Thanks again.
  2. girlulu
    Hi, I've been posting my story and it keeps changing everytime I see a dr! So i need help. Again:) The last GI dr. I saw agreed that I had Celiac however, it was more of a ruling out of everything else and not a clear scientific diagnosis. My symptoms are Extreme fatigue, sharp pain from time to time in my right, lower belly and extreme inflammation of...
  3. girlulu
    I know, CyclingLady...you are probably right. But just know that I have been working out for 3.5 months and feeling fantastic. Then a few weeks ago this started happening. I need to rest and take walks when I feel good and I'll ease back in over time. Grrrrrrr...thanks.
  4. girlulu
    Thanks BJJ....I will certainly keep that in mind. Since I wrote that post I've had two more asthma or bronchitis episodes after a tough workout. My dr. said it's exercise induced and will now use an inhaler before exercise. I don't have the other symptoms of COPD (cough, etc) but I will pay close attention. Thanks for the reply and I wish you the best. ...
  5. girlulu
    Thanks so much. That makes sense actually.
  6. girlulu
    I have been gluten-free since July of last year. Unfortunately in January during business travel I was glutened 3 times and got very sick. (you can't trust restaurants). I recently had a colonoscopy and still have severe inflammation in my ileum. I am hoping in a couple of years that goes away but I understand - because I am almost 51 and I didn't get diagnosed...
  7. girlulu
    One more thing...here is what I do not understand. Why do my GI dr's look at me like I have 3 heads? I have inflammation in my ileum but no chron's and no IBD. The last one asked if I had a dog (no, I don't). They didn't connect the gluten intolerance nor even mention celiac. Is my issue normally not related to celiac? I would think that would be on their...
  8. girlulu
    Your information and knowledge has made my day. I know it's what I have and now I know I will heal. Thanks ever so much!!!!!!!!!!!!
  9. girlulu
    And, thanks for the newbie 101 link but once I realized that I couldn't eat gluten I saw a nutritionist. I basically don't eat foods in a package. I eat organic/grass fed meats, eggs, nuts, lots of veggies and some fruit. I don't go near Gluten free cookies, Gluten free bread, etc. If I am at someone's house for dinner I am very clear before I get there that...
  10. girlulu
    Thank you so much for taking the time....I knew that about not being able to be blood tested because I'm gluten free but I don't feel I want to go back to eating it...even a half slice of bread. I just want to know 2 things and I will keep going the way I'm going.... 1. Can celiac disease cause ileitis? 2. If you go gluten-free for a couple years can...
  11. girlulu
    OK, I can't see that I had a blood test back then for Celiac. They all look like basic blood panels. As far as biopsies...it says this: Distal Duodenum, biopsy Diagnostic features of celiac not seen ONE biopsy was taken from that region measuring 0.5 x 0.3.x 0.3 all imbeded -1 Thanks!
  12. girlulu
    I am so grateful to find this forum. I don't know why I didn't post years ago. I'll try to be brief and to the point but I would love some feedback: 9 years ago had blood and diarrhea which led me to have many tests including a colonoscopy. The only thing wrong with me was ulcers (a few not a lot) and inflammation in my ileum. I tested negative for IBD...
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