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MariandMe

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Everything posted by MariandMe

  1. MariandMe
    Yes she has been taking a double dose of iron with a bit C pure juice and eating as much iron type of foods as I can get in to her (she's picky) and yes she does eat gluten-free "junk food". No to the oatmeal, she doesn't eat that. The Dr did mention her blood cells looked larger than normal, they didn't seem to worried??? I did get a call from the Cardiologist...
  2. MariandMe
    OK so we are still battling our way through this anemia. Her B12 and folate came back normal. The Dr tried to get us in to a GI specialist. She was denied because her scope and colonoscopy came back normal! I don't understand how the can do that when she does have Celiac! The GI specialist recommended she see a hematologist so now we are waiting to see if...
  3. MariandMe
    We are doing the blood work for B12 this week. We are in Ontario Canada and the Dr said they haven had the iron injections in months and nobody seems to think we will have them any time soon. Our GP was no help last week. She said her hands were tied and we would just have to wait. We are trying to get in to the GI Dr to see if they will be of any more help...
  4. MariandMe
    Sure I can share what I have so far. Hemoglobin was 100. Iron reserves didn't register so from what I understand anything lower than 5 doesn't register. My daughter is fatigued and is not functioning very well. She also has a heart condition (5 surgeries) asthma and some other things she has to deal with. So needless to say she is tired of feeling crappy...
  5. MariandMe
    Hello all, so happy to have found this group. I have a celiac husband and daughter. My daughter was diagnosed over 10 years ago by blood work and a GI scope. She has been on a gluten-free diet since then. Recently we have been struggling with severe anemia. She had a flu type of bug a few months ago that ended up with pure blood bm's. She has been scoped...
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