Embers

I can't imagine the horror of having a child with CVS, after experiencing it myself. Please find a 'specialist' in the field, as this is the only way to get respect in the emergency room. The syndrome is 'functional' not 'structural' - so the doc's may not think the pain and nausea match the physical state (and disaster with the medical field unfolds)....

Thanks for the info - I've been too brain dead with chronic Lyme fatigue to research what is known as celiac.. I am NOT on antibiotics, but I am on some Nutramedix tinctures which are much more powerful in killing Lyme than antibiotics (my Lyme-literate MD is holistic), and I have always taken probiotics, I'm also taking grapefruit seed extract, which...

Just joined and your post came up after I started a new post. I have Cyclic Vomiting Syndrome - spent a quarter of the year 2012 in and out of the hospital with week + continuous episodes, and out of desperation (at 98 pounds) found my diagnosis myself. CVS has since been confirmed by a specialist in the field. I feel for you and your history with Dr...

I'm a newbie, please forgive if I post any no-no's! I had the genetic test for gluten allergy and came up negative. However, I've been diagnosed with chronic Lyme and have had to watch my diet, including avoiding gluten. I also have cyclic vomiting syndrome (as nasty as the moniker sounds), and any negative food reactions can set off an episode. I...