shannon79

This is literally the EXACT words my GI doc used when he recommended the endoscopy/biopsy. I don't think that bodes well...

Ugh, the mouth sores. This is one of my symptoms that, oddly, I was actually happy about. No, really...it's an actual physical, viewable THING. "LOOK, doctor--sores in my mouth. All the time." Not like the ambiguous and easily misdiagnosed fatigue, headaches, depression, etc... So unless I have Munchhausen's and I'm going at the inside of my cheeks with...

So, finally got my biopsy results: all normal/neg. No evidence of celiac, h. pylori....They did find a hiatal hernia, gastritis and diverticulosis. Which, oddly, as I read other's posts here I keep finding people who get those same findings in biopsy???! Odd coincidence? Anyway, I took gluten out the day after my biopsy (about 4 weeks now). And aside...

My daughter made me an INSANE gluten-free chocolate cake with pb frosting last night. Gosh I love having a teenager ? But bread..... Oh, bread. I am (was) a bread maker. And understanding the science behind bread making I have a very hard time believing you'll ever get a passable gluten-free bread. Bread IS gluten. Take away the gluten and you're left...

Well, it's done. I called the office and pleaded my case and the wonderful scheduler said "no, you absolutely can't wait until November, I'm GOING to find you something sooner". Had the endoscopy and colonoscopy last Wednesday, gallbladder u/s the Friday prior. Obviously still no answer on the biopsies, but we found LOADS of other fun stuff ? As I suspected...

Nvsmom, This is what I've got: Immunoglobulin A 161 (81-463) Gliadin IgG 7 (<20) Gliadin IgA 26 (<20) Both of these say "this is a deamidated peptide assay" TTG IGA 6 (<20) TTG IGG 9 (<20) Both of these say "results obtained using thr IMMCO ImmuLisa h-tTg IgG ELISA assay" So it looks like the gliadin IgA is the misfit. I'm a medical research...

So I ended up making an appt for gi doc before I even got my results. Rheumatologist got very weird... Called and told me all results were normal. Not gonna lie, I cried. I am to the point where celiac disease would have been an answer, and that's what I want. Then they called 2 days later and said all results were normal except celiac panel, they didn't...

Thank you for your reply. I've been off my prolactin regulating meds for almost 2 weeks now. I did get a cycle at the right time, but it only lasted 2 days and was gone without a trace. And the milk is back Clearly the prolactin levels are still an issue, and I'm really curious what happens if/when I go gluten free. Husband and I have decided to forego restarting...

Thanks for your reply. I'm sorry about your son. Diabetes is a nasty beast, and I feel especially sorry for children dealing with it. I too have the dark cancer thoughts--if it's not celiac then clearly I have a brain tumor. funny/not funny. Still waiting for results....

Thank you. I've been food-in-general light, honestly. When I eat I get so sick I've been gradually eating less and less. At this point the bloodwork is done, so it's kind of neither here nor there. And quite honestly I feel so terrible that regardless of what the labs say I think my next stop is a GI doc. Thanks for your reply.

Hi all! I'll apologize in advance because I'm a wordy gal. So this will probably be long despite my efforts to condense. Well, like everyone else I have a laundry list of symptoms dating back years, but it really took off 4 years ago after the birth of my last child (which was a very stressful pregnancy and postpartum period). Many of the things I've...