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averyevansmom

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  1. Thanks everyone so much for your insight. The results can be so confusing to interpret. I have put in a call to the nurse at Enterolab. Hopefully I get a call back soon. My son has been gluten free since mid January. He had an upper endo (biopsy) as well as colonoscopy done early January. At that time his iron levels were critically low (8) normal range being...
  2. It's been a while since my last post. Just got my son's results. Does anyone have any insight? Does it mean what I think it means? That I haven't been fighting the doc's all this time for nothing? Thanks for anyone's help in advance. Becky Gluten Sensitivity Gene Test HLA-DQB1 Molecular analysis, Allele 1 0603 HLA-DQB1 Molecular analysis...
  3. Will he react to tiny amounts of whey or something else that he never reacted to before? I think it may have been the huge amount of broccoli he had last week. He had it three days in a row and he has a huge bowl off it with supper. I've not let him have it since and he had two normal bm's yesterday. I also have not given him his iron (feel rotten about that...
  4. Does anyone's children have bouts of unexplained D (pasty not loose-watery) after being on the diet for a while? He was doing so well. Is this common or a fluke. I know or am pretty certain he has not been glutened. I've been keeping a food journal, but he's been having D off and on the past week week and a half. I'm starting to think maybe I'm barking up...
  5. My husband remembers giving it to him last week and then again last night. He's just been kinda off all weekend. I never liked the idea of the protein anyway, he's only 3. I know my husband probably only put a small amount in his rice milk, but I wonder if it was enough for a reaction. He just gets such a kick out of it. He's not allergic to milk, but we...
  6. I have an unusual queation. My husband will take the kids downstairs to the gym when he worksout and the kids think they workout as well. When they come up, my husband makes his protein shake, well of course the kids want one. He makes then a small one of course. My question being, since my son cannot handle any dairy other than hard cheese, and this is ...
  7. Everyone here is so awesome! Thanks a bunch. I received a response from the RN at Enterolab. I guess Dr. Fine is out of state. She was very heartfelt and helpful with her answers. My response to people from now on will just have to be to pi** off if they don't get it or don't want to. I think the biggest hurdle were my in-laws. They're set in their ways and...
  8. I've been driving myself nuts with all this. I guess my biggest worry is what people are going to think. I guess I have to get over that. I've also read about the gene theory. I try to read as much as possible and sometimes there's so much contradiction. It's hard to figure it all out. I've read that inflammation in the duodenum (small intestine) is found...
  9. Hi Robbin and thank you I am considering the enterolab test. However I am curious as to why they can't "diagnose". I sent an email to them asking this question tonight. In the meantime, if anyone has the answer for me I'd appreciate it. The diet is the only thing that has made my son feel better. Don't get me wrong, he has his ups and downs, and I can...
  10. My 3 yo had two gene tests run by his ped gi at Children's in Boston. Both were negative. The doctor said because they are both negative the likelyhood of Celiac is 0%. I've read there could still be a very small percentage that have celiac disease even after negative results. He said continue with the diet because it works but at this point we cannot officially...
  11. Very interesting, I'll have to look into that. I'll be calling the doc on Monday if they aren't gone. In the meantime I'm gonna have to pick up new vitamins for him since he takes one immediately after he takes his nasty liquid iron. I'll probably head up to Walmart after he gets out of his Jumping Beans class today. Lil Critters Gummi Vites? Okay, got it...
  12. Yeah, I guess I do need to call my doctor. If by Monday they are still hanging around, then I'll call. I have to reschedule my yearly anyway. Thanks guys. What a pain in the you know what. I'll have to pick up some of those gummi vites. I'm sure the kids will love them.
  13. These things are still hanging on and aren't going anywhere. They are so itchy and the big one hurts. What gives. It's been 8 days. Help.
  14. I've never had hives so that could be a possibility. Do you know how long they last? I've had these suckers for 8 days and counting and they show no signs of fading. They are so itchy and the big one kinda hurts.
  15. Thanks Jerseyangel for making me feel better. His iron level was 8 back in December and will hopefully be retested when we bring him back to Boston Children's on the 16th of this month. I have another question for you regarding myself. I'm the only family member who has followed the diet since it's inception. I took my daughter to Starbucks last week for...
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