kam00096

I had positive blood tests for celiac 2 years ago and immediately went gluten free because I was really ill and couldn’t face continuing to eat gluten during the 10 month wait for an endoscopy. I opted not to do a gluten challenge when I finally got my appointment and had a negative biopsy but with inflammation of the intestines/ stomach which was diagnosed a...

Hi guys, Just wondered if anyone had any advice about travelling to the Canaries? Heading to Fuerteventura (Morro Jable) at the end of the week and it's my first holiday since Celiac/ going gluten free. Have printed restaurant cards, sussed out restaurants which say they have gluten-free options, am taking supplies with me and there's a supermarket that...

Lots of things for me to think about. Right now I'm back to completely freaking out that it's nothing to do with celiac and is something way more serious. Thanks for all the suggestions though.

Thanks for this reply. I've been completely freaked out about it being something more serious but I've had loads of bloods done, plus ultrasounds of the lymph nodes and everything has come back completely fine. Is there anything else you think I should be pushing for?

Thank you for the replies. I'm going to go back to the doctor and ask them to check my levels. Really reluctant to restrict my diet any more when I'm not even convinced it is celiac but I will if I have to. Was meant to be planning a holiday abroad (first in 10 years!) this weekend but between struggling to find decent places for gluten free (within budget...

Hi, I'm really struggling and would love some input from you guys (I have posted on here before... usually when I'm feeling crappy!). I had 2 sets of blood tests come back for celiac around 18 months ago. Because of the NHS being hopeless I had to go gluten free straight away and haven't been able to do a gluten challenge, so don't actually have a...

You guys are absolutely right. I rarely eat out these days but a couple of big family events meant I kind of had to. I'm back to being super careful and taking it easy again now. Still dealing with feeling boaty and shaky (plus the after effects of too much pepto bismal) but at least it's nowhere near as bad as it used to be before I went gluten free.

Thanks for the reply. I was really constipated for a few days last week before all the nausea started. Happily it all seems to have settled and I haven't had any more horrendous nausea for the last two days, which is a massive relief as it used to go on for weeks and weeks and I was worried it was starting up again. Still having a few 'boaty' spells but again...

I haven't posted on here for a while but I'm having a really difficult patch and guess I'm wondering if others have similar experiences. Basically I had two positive blood tests for celiac but no actual diagnosis (it's a long story!). I'm pretty strictly gluten free and some symptoms had improved a bit but I've still been having ongoing issues with night...

The different advice I've had on here has been brilliant! I'm going to strip my diet right back and keep it that way for a while (I've tried it before but never really stuck with it). I'm definitely noticing my temp is funny during the day too (another reason I've been panicking about lymphoma!) but maybe it is still a reaction to something I'm eating. I...

Thank you! The trouble is when I actually wake up I'm frozen! I'm already sleeping with the window open and in a tshirt but I'll definitely have a think about bedding. And I do need to watch the dehydration thing... I'm bad for not drinking enough water. Although ironically yesterday I drank two litres and felt the worst I've been lol. Just out of the...

So I just had my worst night of night sweats yet. Up 4 times and had to change pyjamas. Also I got really dizzy and disassociated whilst driving last night which I haven't had dice going gluten-free. Doctors for me today. I'm completely exhausted and about to run into problems with work because of my attendance but I just can't do it.

Thank you! I'll definitely check it out. Sweat dripping and shattered after a bit of hoovering this morning. Just want to go back to feeling like a normal 30 year old instead of about 100!

Thank you! I'll definitely check it out. Sweat dripping and shattered after a bit of hoovering this morning. Just want to go back to feeling like a normal 30 year old instead of about 100!

I haven't heard of that diet... I'll definitely do some research! I am wondering if I'm one of those folks who reacts to gluten-free oats as I've still been eating oatcakes pretty regularly (ironically for ongoing nausea!). Swapping to rice cakes from today!