Jump to content

kam00096

Advanced Members
 View Profile  See their activity

  • Posts

    45

  • Joined

  • Last visited

  • Days Won

    1

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by kam00096

  1. kam00096
    I had positive blood tests for celiac 2 years ago and immediately went gluten free because I was really ill and couldn’t face continuing to eat gluten during the 10 month wait for an endoscopy. I opted not to do a gluten challenge when I finally got my appointment and had a negative biopsy but with inflammation of the intestines/ stomach which was diagnosed a...
  2. kam00096
    Hi guys, Just wondered if anyone had any advice about travelling to the Canaries? Heading to Fuerteventura (Morro Jable) at the end of the week and it's my first holiday since Celiac/ going gluten free. Have printed restaurant cards, sussed out restaurants which say they have gluten-free options, am taking supplies with me and there's a supermarket that...
  3. kam00096
    Lots of things for me to think about. Right now I'm back to completely freaking out that it's nothing to do with celiac and is something way more serious. Thanks for all the suggestions though.
  4. kam00096
    Thanks for this reply. I've been completely freaked out about it being something more serious but I've had loads of bloods done, plus ultrasounds of the lymph nodes and everything has come back completely fine. Is there anything else you think I should be pushing for?
  5. kam00096
    Thank you for the replies. I'm going to go back to the doctor and ask them to check my levels. Really reluctant to restrict my diet any more when I'm not even convinced it is celiac but I will if I have to. Was meant to be planning a holiday abroad (first in 10 years!) this weekend but between struggling to find decent places for gluten free (within budget...
  6. kam00096
    Hi, I'm really struggling and would love some input from you guys (I have posted on here before... usually when I'm feeling crappy!). I had 2 sets of blood tests come back for celiac around 18 months ago. Because of the NHS being hopeless I had to go gluten free straight away and haven't been able to do a gluten challenge, so don't actually have a...
  7. kam00096
    You guys are absolutely right. I rarely eat out these days but a couple of big family events meant I kind of had to. I'm back to being super careful and taking it easy again now. Still dealing with feeling boaty and shaky (plus the after effects of too much pepto bismal) but at least it's nowhere near as bad as it used to be before I went gluten free.
  8. kam00096
    Thanks for the reply. I was really constipated for a few days last week before all the nausea started. Happily it all seems to have settled and I haven't had any more horrendous nausea for the last two days, which is a massive relief as it used to go on for weeks and weeks and I was worried it was starting up again. Still having a few 'boaty' spells but again...
  9. kam00096
    I haven't posted on here for a while but I'm having a really difficult patch and guess I'm wondering if others have similar experiences. Basically I had two positive blood tests for celiac but no actual diagnosis (it's a long story!). I'm pretty strictly gluten free and some symptoms had improved a bit but I've still been having ongoing issues with night...
  10. kam00096
    The different advice I've had on here has been brilliant! I'm going to strip my diet right back and keep it that way for a while (I've tried it before but never really stuck with it). I'm definitely noticing my temp is funny during the day too (another reason I've been panicking about lymphoma!) but maybe it is still a reaction to something I'm eating. I...
  11. kam00096
    Thank you! The trouble is when I actually wake up I'm frozen! I'm already sleeping with the window open and in a tshirt but I'll definitely have a think about bedding. And I do need to watch the dehydration thing... I'm bad for not drinking enough water. Although ironically yesterday I drank two litres and felt the worst I've been lol. Just out of the...
  12. kam00096
    So I just had my worst night of night sweats yet. Up 4 times and had to change pyjamas. Also I got really dizzy and disassociated whilst driving last night which I haven't had dice going gluten-free. Doctors for me today. I'm completely exhausted and about to run into problems with work because of my attendance but I just can't do it.
  13. kam00096
    Thank you! I'll definitely check it out. Sweat dripping and shattered after a bit of hoovering this morning. Just want to go back to feeling like a normal 30 year old instead of about 100!
  14. kam00096
    Thank you! I'll definitely check it out. Sweat dripping and shattered after a bit of hoovering this morning. Just want to go back to feeling like a normal 30 year old instead of about 100!
  15. kam00096
    I haven't heard of that diet... I'll definitely do some research! I am wondering if I'm one of those folks who reacts to gluten-free oats as I've still been eating oatcakes pretty regularly (ironically for ongoing nausea!). Swapping to rice cakes from today!
  16. kam00096
    Thank you so much for this! Honestly it really does help having somewhere to offload where people 'get it'! I'm sorry you had a supermarket moment... I've had plenty of those but I would handle it better if I felt all the effort and label checking was helping. I have wondered about cross contamination or other intolerances but I guess I've been putting off...
  17. kam00096
    Thank you for these replies. Am hoping it may just be hormonal although that seems unlikely really. I'm so fed up of all this. I have elderly parents who are both unwell and a high stress job, and Im not sure how much longer I can deal with waking up feeling so ill for.
  18. kam00096
    I'm two weeks in to a four week wait for biopsy results and I'm panicking. I've been gluten free for almost a year after 2 positive blood tests for celiac, and refused to do a gluten challenge, as I can't get any more sick again. The docs decided to do the endoscopy and biopsy anyways as I was still having issues. Basically I'm really concerned about...
  19. kam00096
    Thanks for the replies! Am sorry other people are still struggling too. Docs have been completely useless - last time I went he said I had 'too many symptoms' for the time slot and would have to pick the ones that were most worrying me! And they say they won't check my vitamin D or parathyroid for a year now they've had one normal result. I've had my blood...
  20. kam00096
    I'm at the end of my tether. I've been gluten free for 6 months after 2 lots of positive blood tests. No biopsy as I was messed about by the NHS, had already gone gluten-free and refused to do a gluten challenge at that time. Am waiting on an endoscopy anyways due to ongoing symptoms. I feel no better than when I was eating gluten. In fact some of the...
  21. kam00096
    After I had positive blood tests for celiac at the start of the year the docs also discovered I had extremely low vitamin D and high parathyroid. At the time I was having major issues with dizziness and leg pain. They put me on high dose vitamin D but didn't give me a maintainance dose afterwards and within weeks of the course finishing it had dropped right...
  22. kam00096
    Thanks for the advice. I've been convinced it's something else with my blood sugar or thyroid or something but bloods are all fine. Am just gutted that despite being really pretty strictly gluten free I'm still not feeling great at all. The oats were definitely gluten free and I've had gluten-free oatcakes before but will keep an eye on reactions from now...
  23. kam00096
    Despite being gluten free for 7 months I'm still having loads of health issues. No idea if they're all related to celiac or not but I've had a strange thing happen a few times this month and am wondering if it is down to gluten from somewhere. Basically it feels like a monster panic attack or hypo... once every few weeks all of a sudden I'll get really shaky...
  24. kam00096
    Thanks for the replies. Am sorry other folks are having similar problems. I'm trying to tell myself that I had noticed the swollen lymph nodes before my last set of bloods and they all came back great, and that the night sweats have been on and off for the last few years (in which time I've had hundreds of normal bloods done, and a clean chest X-ray) so it...
  25. kam00096
    Hi guys it's been a tough day. I had to decide whether to go ahead with an endoscopy next week. GP wanted me to do it despite not having done a gluten challenge and being gluten-free for 5 months. I wasn't sure if there was any point at all at the moment and after spending most of the morning trying to get advice from anyone at the hospital the endoscopy...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.