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SueMD

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SueMD last won the day on August 30 2016

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  1. SueMD
    blimey I've set the cat amongst the pigeons here Interesting debate tho - from another angle - I live in an area (of the UK) where the dairy cows regularly get in the way of the school bus, and are known by name by the farmer (and the local kids), and I feel no conflict in drinking milk if it comes from sources like this. Having said that we also ended...
  2. SueMD
    hi all - just wanted to share in case it's helpful for any one else newly diagnosed. It's been nearly a year since diagnosis and I have to confess it's been miserable. Very very slight improvement in gut symptoms but nothing as close as I expected/hoped for. Most days I was in discomfort and had diarrhoea. Although I knew lactose was an issue with newly...
  3. icon SueMD reacted to a post in a topic: Overwhelmed and unable to accept
  4. SueMD
    thanks both of you - good advice. I don't really feel it's urgent so will wait and ask at the post-diagnosis appt and if I'm still worried will get an appt with the GP. Thank for helping me clarify things in my own mind
  5. SueMD
    hi all, I've had a recent diagnosis of coeliac. I'd been pretty careful since the biopsy but super careful since the result (including throwing out old foods, kitchen equipment, etc). I eat nothing that I've not made myself (am lucky to work from home), and it's all whole foods, nothing pre-prepared at all. In terms of my guts the results have been amazing...
  6. SueMD
    Just a quick one to say I got a diagnosis of celiac disease today. I know in the past it's been helpful for me to know the outcome for other folk, so thought I would update. The moral of this story is even with a VERY borderline blood test it's worth persisting. thanks for all the help Sue
  7. SueMD
    hi Karen - that's really interesting - thank you.
  8. SueMD
    I've finally had time to read that link properly - very clear and does make much more sense. Tho i understand my body attacking my thyroid, I don't think I quite "got" how gluten starts the same process off in celiac disease. thanks all Another question for you experienced folks out there (cycling lady? Kareng? cristiana? ) Bear with me... I've...
  9. SueMD
    interesting about the Hashis calming down cycling lady - mine's been temperamental and acting weird (also menopausal) - could be another benefit to sorting out the celiac disease (if it is) mayfly - i've really not got a handle on how cautious i need to be yet (haven't yet got separate toaster etc), but am tempted to go the same route as cycling lady...
  10. SueMD
    Thanks both of you Cristiana - that's really helpful thank you cycling lady - yes, i'm aware it's not an allergy (sorry if my post implied i thought it was), i'm just not very clear in my own head yet what it all means so was looking for a bit more info. I am also aware of what autoimmune disease are as I have Hashimotos, and also lost a close...
  11. SueMD
    hi there - can someone explain how just a tiny bit of gluten (say a crumb) can wreak so much havoc? I'm not doubting it, I just can't quite get my head around what it does. The relevant information may be way over my (non-medical) head, but I'd like to try to understand. I've been off gluten (ish) for about a year, and had no idea that tiny bits could...
  12. SueMD
    thanks both of you - it is really helpful and is motivating me to try to get this properly sorted. i'm afraid I don't know which test was done - all I know (from reading over doc's shoulder) that it was "8" when she considered it to be borderline positive (and when i was definitely reducing my gluten intake). When another was done (later in the year...
  13. SueMD
    thanks SLL - much appreciated. Is the protocol the same in the UK I wonder? Seems to be that they don't do endoscope unless there is a definite positive blood test (which mine wasn't), but I could be wrong. I need to be more assertive about all this I think. I've been off the gluten in a half-hearted way for over a year (assuming IBS) so am rather daunted...
  14. SueMD
    Hi there, I'm 53, with a long long history of "upset stomach" problems (basically diarrhea every morning, often 3 or 4 times, every day for probably 6 years, but in a lesser version about 20 years. It got a lot worse about a year or so ago and after basic scans for anything really scary (which were thankfully negative) I decided it must be "just" IBS...
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