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jen4az

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Everything posted by jen4az

  1. jen4az
    Hello all, I can't believe I have been posting about our diagnosis process since July. It's surreal how long it is taking. A little update and some questions. Here are the results of the endoscopies. 3 year old endoscopy: pathology report confirmed celiac and gastritis- they did not provide a marsh grade… is that something I NEED to have? ...
  2. jen4az
    He was not IGA deficient. I'm still hoping we can convince the base GI to approve his referral. Thanks for that thread about TTG Igg. That's exactly what I was wondering.
  3. jen4az
    Thank you for the resources. I am SO frustrated. We are in the military and my husband's doctor sent over a referral request to the base GI. The Dr. declined the referral to see the GI. He said that a weak positive TTG-IGG does not warrant a GI referral or Endoscopy. My husband told his doctor that he has diarrhea at least once a day, a family history...
  4. jen4az
    Thank you for the responses! I have been asking my kid's pediatrician to test all of my kids for celiac since it runs in the family and my 5 year old was positive. She wasn't convinced that they all needed testing, so she only tested my 9 year old daughter with symptoms. After my daughter with symptoms tested positive and my husband, she finally agreed...
  5. jen4az
    We are still waiting on the 2nd opinion for my 5 year old's diagnosis. Meanwhile, my husband and 9 year old were tested because of symptoms they have. Here are my daughter's results. I asked them to run the DGP tests, but they did not. Gliadin Ab IgA: 15 ref rng (0-19) Gliadin Ab IgG: 52 ref rng (0-19) TTG IgA: 2 ...
  6. jen4az
    We can't get in for a 2nd opinion until December! We've decided to go gluten-free until then. After a rough, tired and cranky first few days, my daughter seems to be feeling better. My question is: how long do most people wait to re-check antibody levels? Particularly ttg-iga and dgp-igg since those are the ones she tested positive for initially?
  7. jen4az
    For those of you that are curious of the outcome of all this, my daughter's genetic test came back positive for DQ2 gene. I mentioned the 4 out of 5 rule to the GI and he said he only uses a positive biopsy and positive blood work to give an official diagnosis. And he suggested seeing an allergist to rule out allergies and repeating the endoscopy in a few...
  8. jen4az
    Thank you all for the resources and helpful information. We are waiting for the genetics results test to come back. I will update post an update when I have more information. Thanks again!
  9. jen4az
    Thank you so much for the responses. I'm relieved to hear there is a 4 out of 5 rule. I knew there had to be a more logical approach than waiting for more intestinal damage. We actually did do the genetics blood work yesterday after the biopsy results came back because I'm trying to gather as much information as I can before we make a decision. The...
  10. jen4az
    I'm so confused about my daughter's diagnosis. I hope somebody can help. My 4 year old daughter has a swollen belly, stomachaches, and lots of gas. She does not have diarrhea or delayed growth. Because of her symptoms and because it runs in the family (2nd degree relatives) I had her tested for celiac. She was weak positive for TTG (IGA) and strong...
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