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shellyb11482

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Everything posted by shellyb11482

  1. shellyb11482
    Ok, so I would love to hear your opinions and advice on this. I attended grand rounds last week and the day after my dermatologist called me to tell me what all of the doctors discussed. Many of the other dermatologists didn't think I had DH because they didn't think my scars were in a pattern that looks like classic DH. Their guess is that I just have general...
  2. shellyb11482
    I can't thank you enough, Squirmingitch. You are such an amazing resource!
  3. shellyb11482
    Glad to hear you are ok! We lost power a couple of times today but not for too long. I think the worst of the storm is over. I have been reading through the DH threads on here and will continue to do so. Thank you again for all of your advice!
  4. shellyb11482
    Wow, thank you so much for all of that information! This is so helpful. I will definitely print this info out and bring it in to my next appointment. I really appreciate all of your help!
  5. shellyb11482
    Cyclinglady, that makes me feel better to hear that there are others who also had a positive DGP and negative TTG. Honestly, yes I think she was too wrapped up with the rash. I was seeing my dermatologist and allergist on a weekly basis because of how bad it was. Also, when I went to the derm, not only would I be seen by my primary doctor, but on several...
  6. shellyb11482
    Squirmingitch, I forgot to mention best of luck to you during the storm! I hope you are safe and that your home isn't impacted too badly! I'm on the coast in SC so we will see some storms from it but nothing near as bad as what you will have. Take care and good luck.
  7. shellyb11482
    SquirmingItch, I really appreciate you gathering info for me! To answer your questions, yes, I'm on Dapsone now and have been on it for about 4.5 weeks. I have been gluten free for the same amount of time. I started on 50 mg of Dapsone which didn't seem to help much. I spoke to my doctor about it and after about a week she raised it to 100 mg. Since then...
  8. shellyb11482
    Thank you so much for your quick response, GFinDC. While I wouldn't be completely opposed to another skin biopsy, I already had 4 done (3 were done prior to my dermatologist suspecting DH) so I don't love the idea of yet another hole and scar on my body. Plus, fortunately I don't have any fresh lesions now, which I believe is needed for the biopsy. I wish...
  9. shellyb11482
    Hello, I developed an extremely itchy skin rash that basically has covered me head to toe a few months ago. After being told it was eczema, reaction to bug bites, scabies, chronic urticaria, finally my dermatologist mentioned DH. She did a skin biopsy but took it directly from the lesion, not adjacent to, and it came back negative. Even so, she felt...
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