Nikko

Thank you! I forgot to mention that she also tested positive for HLA DQ8 gene, which I know predisposes you to celiac but other autoimmune diseases. I'm surprised he never mentioned DGP. I will ask about that, and thanks so much for your feedback about yourself and your niece, I want to explore every possibility!

My 9 year old daughter's original bloodwork showed high TTG but negative EMA. Her biopsy was negative (and done by a highly regarded specialist at a children's hospital). We were told to continue a normal, gluten containing diet and retest. Her follow-up bloodwork 5 months later showed high TTG (23) but negative EMA. She is also very underweight with little...

Hi, My daughter had a ttg of 160. Her dr was sure it was celiac, we did the biopsy to assess condition and see if there were any coexisting issues and the biopsy came back totally negative. I was under the impression false positives are very rare (especially when so high) - any idea what could be going on? She does not have diabetes. In the meantime...

Thank you, I appreciate your input, it is very helpful.

Hi, My 8 year old daughter just got bloodwork showing a ttg of 160 but normal gliadin. Her GI wants to do biopsy. I was under impression levels above 100 were positively predictive of celiac but he was much more vague. She does not show signs of inflammation (stomach pains or diarrhea) but is quite underweight despite our best efforts and has chronic...