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brooke12

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  1. brooke12
    Thank you all for your advice! I'm glad I posted. I finally got our PCP to send a referral today. I'm certain that my daughter has celiac. She snuck some Ritz crackers at preschool today (first gluten in 2 weeks) and has been in so much pain the last few hours. I wouldn't want to subject her to the gluten challenge but hadn't thought about needing a diagnosis...
  2. brooke12
    I recently discovered I have celiac disease. I have suspected that my 3 year old daughter has it as well so I had her tested. Her labs came back SO HIGH! Ttg >100 EMA titer 1:640. Yes, SIX HUNDRED FORTY!!!! My doctor is obviously very uneducated on celiac disease. I had to diagnose myself and he gave no advice or insight on my daughter's high...
  3. brooke12
    Just an update- I tried doing a gluten challenge in preparation for an appointment I scheduled with a GI. I made it 8 days and was miserable. So sick. So much abdominal pain, joint pain, foggy head, heartburn, etc. I couldn't go any longer. I have young children and just can't manage daily life while eating gluten in such high amounts. I decided to call...
  4. brooke12
    Can anyone tell me what is required for a gluten challenge? What is the amount I would need to consume every day? For how long? I've seen a lot of different information in my research.
  5. brooke12
    Cyclinglady thank you so much! I really appreciate your response and all the info you shared. When the PA initially called me with lab results I actually told her I didn't think she was correct and shared some of my research with her. She told me she would talk to the dr and call me back. The answer didn't change when she called back that evening so I've...
  6. brooke12
    My brother was recently diagnosed with Celiac Disease, so I had my family doctor test me for celiac and food allergies. His assistant called with my results saying that I don't have Celiac, just maybe a slight gluten allergy and should try not to eat too much gluten. I had done my research prior to her call and don't know that I totally agree. My results...
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