Jump to content

Stringcheese32

Advanced Members
 View Profile  See their activity

  • Posts

    25

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by Stringcheese32

  1. Stringcheese32
    Just a quick update: Past labs showed: IgA deficient Strong positive DGP IgG Positive Genetics DQ 7,8 Subsequent endoscopy was negative at the end of December. I just had repeat labs that showed: Antigliadin IgG positive- 27 (reference range <14) EMA IgA positive and IgA deficient I'm starting to get a...
  2. Stringcheese32
  3. Stringcheese32
    Thank you for your reply! I mentioned this to his assistant on the phone and they didn't seem interested in doing such until after they finish lactose and fructose intolerance testing which won't be done until Mid February. I just don't want to keep consuming gluten as I know I feel better when I don't consume it. I had to be gluten, dairy and soy free...
  4. Stringcheese32
    Also, has anyone else experienced positive DGP IgG labs, positive genetic testing but had a negative endoscopy? And, if so, how was the situation handled? Thanks!
  5. Stringcheese32
    ANATOMIC DIAGNOSIS: A. Duodenum, biopsies: - Duodenal mucosa with no specific pathologic features. - No evidence of celiac sprue. EBG 12/23/2016 HISTORY /CLINICAL DIAGNOSIS: Chronic abdominal pain. GROSS DESCRIPTION: Duodenal biopsies The specimen consists of 12 portions of tan soft tissue ranging in size from 0.1 to 0.6 cm in greatest dimension. 4C12NS....
  6. Stringcheese32
    We just had our first visit with the endocrinologist last week and she took an x ray of our daughter's wrist and hand to assess bone age. Our daughter's bones are actually only matured to 2.5 years not her actual age. I would definitely seek diagnosis for celiac, because if it is celiac then you have your answer, but if it's not then you know you need to...
  7. Stringcheese32
    Have you ever had her thyroid levels checked? TSH, free t4, free t3, reverse t3, and TPO and Tg antibodies? I'm currently seeing an endocrinologist for my 3.5 year old who has dropped off her curve (currently 2% for height and 5% weight). When a child is failure to thrive the first two things that come to mind are thyroid and celiac, and then...
  8. Stringcheese32
    So, I finally had my endoscopy this morning. My GI said that everything appeared normal and that he took several biopsies. I'm not sure how many that actually entails or where he took them. I'm wondering if, although things appear visually sound, if the biopsies could still come back positive. To refresh everyone so far: DQ7,8, DGP IgG positive, IgA deficient...
  9. Stringcheese32
    That's probably a good idea. I have been dealing with night sweats for over a year now. I had them every night for nine months straight, followed by a few months with it only happening a handful of times and now they're back again. I went to my GP to figure out if it was early menopause (although I was only 34 at the time), lymphoma, sarcoidosis, lyme...
  10. Stringcheese32
    Thank you everyone for your insight. I guess I've never considered other allergies regarding beer. I don't drink wine because it causes extreme acid reflux for me, and I had enough of liquor in my college days. I only drink beer (occasionally). If I stick with one, I seem to be okay, most of the time, but two always seems to make me ill. It's really...
  11. Stringcheese32
    I haven't been diagnosed with anything yet, which is why I'm continuing with gluten. I will say though, after last night, I may not drink beer anymore. It's seriously one of the worst feelings ever - the nausea is incredible and my skin is so hot, but yet I'm not sweating and have trouble cooling myself down. I took tums, to try to calm my stomach and...
  12. Stringcheese32
    Yes, I'm still consuming gluten. Do you think this is gluten related?
  13. Stringcheese32
    I have always been passionate about drinking and trying new beers. Lately, when I drink just two beers I find that I'm waking up several hours later feeling unbearably hot (but unable to sweat) and so nauseous. It lasts for about an hour or two and then I can manage to fall back asleep. I wake up in the morning feeling really sore and incredibly fatigued...
  14. Stringcheese32
    Thank you all so much! You all are amazing! The last several weeks have been very stressful and your continued advice and listening ears have been my light - so thank you! Gemini, the Albany area is not that far from me either. Perhaps 2-2.5 hours, certainly closer than Boston. I'd honestly travel anywhere to get this figured out more promptly. Thanks...
  15. Stringcheese32
    My thoughts exactly - so disorganized. I'm honestly fairly disheartened at the direction the medical field has taken. You really need to be your own advocate, which means you really need to read peer reviewed articles and do your own research (which is not always easy when taking care of three kids under the age of 5). My children are my real motivation...
  16. Stringcheese32
    So, my GI finally returned my call asking what questions did I have. He said that my past GI had taken biopsies and they were fine (over a year ago). Then he started talking about putting me on rifaximin half tablet daily, which surprised me. So I said, "okay, you think my symptoms are all SIBO related and that I don't have celiac?" To which he said yes...
  17. Stringcheese32
    No, they didn't test my ttg igg, which I was surprised about considering the low IgA and positive DGP Igg. (The tests they did were IgA serum, Ttg IgA, DGP Igg and IgA and gene testing) If he ever returns my call, I was going to ask him about that. He initially wanted to set up a endoscopy, but I told him I had one last year (with my prior GI) and he said...
  18. Stringcheese32
    Also, I know that the DQ2 is the most common one representing celiac disease. I have low IgA-35 and my DGP Igg - 34.8 (medium to strong positive is greater than 30) All the IgA labs were within range. I have Hashimoto's as well. My vitamin D level is 23. I guess I'm wondering how likely it is that I have celiac disease. The...
  19. Stringcheese32
    Hi everyone! I know I told everyone that I tested positive for celiac gene pairs, I was just hoping to get an explanation of what they mean: DQ Alpha 1 03:01, 05 DQ Beta 1 03:01, 03:02 DQ Serological Equivalent: 7, 8 Thank you!!
  20. Stringcheese32
    Thank you for sharing your story with me! I'm glad that you know for sure what is happening in your body - please keep me posted with how you feel as you progress on your journey!!
  21. Stringcheese32
    Thank you so much for your response! I'm actually not sure what the GI was looking for. I had not had any labs prior for Celiac Disease. My major complaint was extreme bloating, fatigue, abdominal pain and major constipation. I also had to do a defecogram, sitz test and some other test. He didn't seem to think I had Crohn's because I was constipated...
  22. Stringcheese32
    Thank you again for your response, guidance and wisdom! I apologize for the delay in response. I have three little girls that keep me really busy. My sister has not been tested for Celiac. She was diagnosed with Crohn's when we were 19, we're 35 now. My main motivation in figuring this all out is really my children. They're almost 5, 3....
  23. Stringcheese32
    No, I don't think he was looking for celiac. I'm not quite sure what he was looking for. I do have a twin sister (fraternal) with crohn's colitis, so perhaps that. I have no idea how many biopsies he took. He's a surgeon more than practitioner, so I actually switched to another GI. He is the one that tested me for Celiac Disease with the blood panel...
  24. Stringcheese32
    Thank you!!! I had a endoscopy and colonoscopy over a year ago due to chronic constipation and they did biopsies that I believe came back negative. However, prior to that procedure I had been gluten free for about 8 months (due to sensitivities in my breastfeeding baby. I removed dairy, wheat and soy). Is that biopsy still reliable or do I need a repeat...
  25. Stringcheese32
    Hi everyone! My name is Tara. I've been having GI symptoms most of my life, but things got dramatically worse at the onset of my pregnancies. Current diagnoses: Hashimoto's Thyroiditis SIBO I was recently tested for Celiac Disease: Everything looked good except I have IgA deficiency : 35 And my gliadin (deamidated) IgG...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.