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JonBNF

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Everything posted by JonBNF

  1. JonBNF
    Got the gene test back. I was told it's negative. I think it's safe to say I don't have celiac. If anything I have sensitivity. Not that I was praying to have celiac I certainly rather have it over crohns which is still up in the air. I'm going to a different GI Monday they're part of prominent medical school so I'm thinking the treatment will be better there...
  2. JonBNF
    That's the one test I've never had. I had the one where I drank white chalky stuff and then took an X-ray and I've had 3 colonoscopies all came back negative for crohns. Every ct scan negative every sonogram negative. She doesn't seem concerned considering those numbers are the same as they were 12 years ago. I think it's time for a different gi. What's ironic...
  3. JonBNF
    I got some more labs back. I'll lay it all out as if right now. iga-475 ttg iga-2.35 Dgp iga-8 Dgp igg-2 aga iga-21.9 aga igg-10.25 asca iga-29.8 asca igg-16.1 np at gastro told me the asca numbers are the same from when I had the test done roughly 10 years ago when they scoped me and looked for crohns and found...
  4. JonBNF
    I got back my asca test. As you can see it's positive. It seems to mirror my aga test. From online research this can mean a few things. I have celiac and I'm cross reacting to yeast. I have crohns which was suspected in the past. Or I have an allergy to gluten and yeast. Anyone know much about this? Still waiting on my dgp and hla test. Also waiting for results...
  5. JonBNF
    I'm asking friends and researching to find new drs. Right now I have to rely on these drs. It takes so long to get into drs. I'm thinking maybe I have gluten ataxia it's either that ms fibromyalgia or Lyme disease found a tick in the summer when I was taking a shower but I was never bit. My main symptoms are vertigo weird mild tingling in my calfs and feet...
  6. JonBNF
    I got the pathology report back. Normal villi. But I have Barrett's esophagus. I had the blood work done for dgp and hla waiting for those results. Now I don't know if this is a false negative considering I was gluten free for 2 weeks prior to the biopsy and according to the dr he only took one biopsy.
  7. JonBNF
    Does anyone know if my gliadin tests are the old tests or the newer dgp test?
  8. JonBNF
    Thanks guys. I think my concern is my ttg is showing negative test results and after getting a second opinion I was told that my labs aren't showing anything outstanding to suggest celiac. So I'm worried something else is being overlooked. Should I request ttg-igg even though my iga numbers are high.
  9. JonBNF
    He told me it's showing I had it in the past. Which I don't recall ever having it.
  10. JonBNF
    Thanks cyclinglady I've been eating Whole Foods. This morning I was super sick feeling thought I was gonna puke I've never puked. I had to rush to a store to find a bathroom and my breakfast from the morning came out 2 hours later and after I felt as if I was gonna pass out. I just thought after a week of starting the diet I would notice a little improvement...
  11. JonBNF
    Is it normal for my pain to get worse. I've been gluten-free for the last 5 days. The fatigue seems better but the mornings are terrible loads of anxiety and fatigue. But my abdominal pain seems worse pretty much anything I eat is hurting.
  12. JonBNF
    Can someone help me better understand my blood test results?
  13. JonBNF
    Visited the GI today seen the np there. She told me the blood tests are definitive and is sure I have celiac and told me not to start eating gluten. I'm so weak that I can't even get into the shower. I have been out of work for 2 weeks. I feel like I don't have time or strength to risk eating gluten. My egd is scheduled for December 5th.
  14. JonBNF
    Thank you. I'm already eating gluten free. Thinking about going back to eating it terrifies me with how weak I am. My gp told me not to start eating it. I asked him if I should for the biopsies. Is it normal to have ear pain and dizziness? Every semi loud sign gives me a jolt and drives me crazy. Also when I start to fall a sleep I get a heart flutter that...
  15. JonBNF
    Does the anxiety subside? I feel like it's the end of the world right now or like it's not celiac and I'm gonna die because they'll never get the right diagnosis. I'm so weak that sometimes I feel like when I fall asleep I won't wake up. I didn't feel this weak until I took the omeprazole. Also I'm worried that I won't handle the anesthesia well cause of...
  16. JonBNF
    I have my gi appt tomorrow. I'm just nervous the omeprazole triggered an allergic reaction in the form of an auto immune response. My monocytes were in the high normal range and I tested positive for having mono when I was younger but I was told I didn't have mono. My concern is they're misdiagnosing me. I never had mono as far as I remember and I've been...
  17. JonBNF
    I'm having a lot of anxiety. My symptoms really took off after I took 2 omeprazoles. Now I'm doing research on auto immune liver disease and all my symptoms point to this. Is it possible my blood test doesn't mean celiac but it means liver disease? Help!
  18. JonBNF
    Thanks for the response. I'm really weak right now, that came on suddenly which prompted the blood test. I lost 15 lbs in about 2 weeks. Is there any thing particular I can eat that is easy to absorbe to help bring back some energy. Also I get these sort of shocks when I start to fall asleep. Also I've been fidgeting a lot due to the anxiety and when I stop...
  19. JonBNF
    For the past couple months I've been having upper right abdominal pain that keeps getting dismissed as IBS. I have had 3 colonoscopies and endscopies roughly 8-10 years ago everything always came back negative and always left with an IBS diagnosis. I've dealt with constipation and pain for the past 12 years. But for the past week I suddenly became fatigued...
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