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Mom.2.celiac?

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  1. Yes. She's been in the ER with this in the last 6 weeks as well. It was completely healed by the 2nd biopsy. I don't understand that either... I will check out your link.
  2. My doctor is on the suggested doctors on the dfw celiac support Web page. I looked them up last night. My pedi GI said the results were inconclusive. I think he is hesitant to diagnose her. I see her pediatrician in am hour and hopefully get my pannel back later today. I do appreciate having others look over this as my friends and family can...
  3. Thanks again to everyone. I was able to look up Marsh scoring and that was very helpful. She didn't get a score like that on her report. I'm guessing she would be a 3. We see her pediatrician tomorrow. I'm bringing everything with me. My celiac panel is pending. She's so little (45 pounds). She's had her tonsils and appendix out...
  4. The paperwork from her procedure(s) The 2nd is on the bottom and you can compare before and after pictures.
  5. Here is the whole page. It doesn't say how many. I think he told me he took 4 biopsies ateach location. Do they store the blood for any period of time?
  6. Here is the whole page. It doesn't say how many. I think he told me he took 4 biopsies ateach location. Do they store the blood for any period of time?
  7. Thank you so much for your response and the warm welcome. She had gluten for 6 years before the 1st blood test. They took 2 vials of blood. They ran a full celiac panel and it was all negative. It is frustrating that he told us to go completely gluten-free. We did 2 months of gluten-free. Yes the damage healed completely in ...
  8. I'd love some help from anyone furthee up this learning curve! We can't get to a diagnosis of celiac... is this supposed to take forever? The testing has been going on for 4 months now. She's just turned 6. Oil floating in toilet with a #2 sent us up this path. Celiac panel=negative 9/2016 Biopsy= EoE (15) in her esophagus and mild...
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