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Another PO'ed Celiac

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Everything posted by Another PO'ed Celiac

  1. Another PO'ed Celiac
    I'm not sure who might be following this thread anymore but I thought I'd add some more interesting information into the mix. So because of my constant battles with candida, my immunologist thinks I have chronic mucocutaneous candidiasis which fits as I have struggled with yeast problems for years. It has also been shown to raise Gliadon antibodies (here...
  2. Another PO'ed Celiac
    Thank you to all of you with advice and encouragement because I have read each part and it's helped me try to figure this mess out just a little bit more at a time. I thought I'd post a quick update to this ongoing drama in case anyone was interested or curious like me. I am actually more confused than ever after meeting with my genetic counselor. Do I...
  3. Another PO'ed Celiac
    Just thought I'd post an update in case people are curious. I got the results of genetic testing. I do have the 'Celiac gene' but it looks like I also have HFE hemochromatosis. This actually explains a lot... scarily a lot. Not sure where I'm going from here. Still frustrated beyond belief. NOT doing the blood draining treatment thing. I don't know...
  4. Another PO'ed Celiac
    I just re-read your original post and I am more convinced than ever that it's Candida. The rashes and feeling like something is stuck in her throat are both things I have been very familiar with! Look in her throat with a light and see if you can see any white patches of any kind. Candida has been seen in some studies to actually bring Celiac on and also...
  5. Another PO'ed Celiac
    It can but they have shown time and time again that the liver bounces right back after the medication is stopped. I had some severe abdominal pain, cramping, bloating and major pain that went away after 2-3 days on Fluconazole! I showed visible signs of liver damage in the form of mild jaundice after being on it for 5 weeks, but blood work done since I...
  6. Another PO'ed Celiac
    Thank you for the clarification on thyroid and parathyroid. I was too tired to look it up last night. I am not jittery and don't consume a lot of caffeine. 1 zipfizz has less caffeine in it than a cup of coffee. And I just started back up coffee yes, but it's about half a cup a day. That I drink throughout the morning and the zipfizz throughout the afternoon...
  7. Another PO'ed Celiac
    Totally understandable and respectable. Like an addict who can't be helped until they want to be...
  8. Another PO'ed Celiac
    Try treating Candida? If she feels better after a week or so on something like fluconazole, I bet that could be the issue. It can cause all that and more! Especially after exposure to antibiotics. It can't hurt and is a rather simple step to try to rule out.
  9. Another PO'ed Celiac
    Yes finally understanding! Thank you! This is exactly what I needed! I keep stressing to my doctors that I think I have a thyroid issue and have been avoiding Vitamin D because my instincts are telling me to and I've learned to listen to them. I have always been super sensitive and somewhat empathic my whole life. I am used to to and it is exactly why...
  10. Another PO'ed Celiac
    BTW...I don't have diarrhea! And have been through the battery of tests for autoimmune disease and they have all been normal. I have been told by a very reputable doctor who is up on all the latest research and is brilliant and highly regarded in his field that the chances that I have an autoimmune disease with these kinds of numbers is astronomical. Something...
  11. Another PO'ed Celiac
    I CAN'T EAT WHOLE FOODS BECAUSE OF MY SLEEVED STOMACH AND I'M BEING TOLD TO CUT OUT EVERYTHING PROCESSED. SERIOUSLY? I have literally been told not to eat every single food out there by a combination of difference sources. By the way, supplements are processed. So are protein drinks and anything that comes in a can. I am not lacking in any vitamin...
  12. Another PO'ed Celiac
    Like I said, one by one everything in my life is being taken away from me while all I do is continue to get worse. The only vitamin level I've been low in is Vit D...but Vit D supplements cause kidney stones. My B12 is through the roof and yeah I have suspected MTHFR mutation so I'm on hydroxo and adeno forms of B12. I did magnesium Calm which caused intolerable...
  13. Another PO'ed Celiac
    "Allowed: brown and white rice; all fresh fruits and vegetables; fresh meats; fish; eggs; dried beans; unseasoned nuts in the shell; butter; plain yogurt; plain milk, and aged cheeses; oils; vinegar (except flavored or malt); honey; salt. Beverages allowed include 100% juices, water, and Gatorade." Ok again..I cannot eat most of what is on that list...
  14. Another PO'ed Celiac
    After...The sleeve was over 4 years ago, the Celiac last December just before Christmas. Before going gluten free, I had no stomach issues at all, just a large ovarian cyst that was sitting on my bowel causing pain with movements, which is why they talked me into doing the stupid scopes that I did NOT want to do. Once it ruptured (which was a whole traumatic...
  15. Another PO'ed Celiac
    Sorry, coffee was one of the things that was suggested I eliminate because of the amount of milk I used to add to it and the caffeine causing problems since I take a stimulant for my sleep problems (narcolepsy/hypersomnia) and ADD. So I did to see if it would make a difference but now that I see it didn't, it's likely going to come back at least a couple...
  16. Another PO'ed Celiac
    What do I eat? Nuts and cheese pretty much! Mashed potatoes, limited cooked veggies (cooked to pretty much mush), a bite or two of meat here and there, gluten free cereal sometimes, maybe 3 or 4 grapes here and there, a banana here and there...I'm telling you, not much! Sargento Balanced Breaks have been my mainstay for months. Sometimes I get daring...
  17. Another PO'ed Celiac
    I have my own mini fridge, microwave and toaster and I don't even go in the kitchen. Everyone in the household is mostly gluten free (the kids have a couple things but that's why they have their own space for them). No flour or anything that could possibly go airborne is allowed in the house. We don't eat out because of cross contamination risk. I even...
  18. Another PO'ed Celiac
    The part that I'm not understanding is that I had absolutely NO improvement in symptoms even after 6 months of NO gluten whatsoever. In fact, my stomach problems (constipation etc) got worse! POTS was realized only in the last 3 months. I was actually reading that some lymphomas can cause false positive Celiac diagnosis and we have been suspecting that...
  19. Another PO'ed Celiac
    I posted a huge tantruming rant back when I first diagnosed. No idea how I would get through the misery. It wasn't easy and there were times I didn't care if I lived or died, but I still did it. I weaned down off the gluten because otherwise there was no way. The initial severity of the misery got better, but it HAS NEVER GONE AWAY AND MY STOMACH PROBLEMS...
  20. Another PO'ed Celiac
    I have NO gluten cravings. Knowing it can attack my brain and cause irreversible damage...that was all the motivation I needed to make gluten laden food look unappealing to me. I have a unique gift to train my brain into associating negativity with a particular food or substance. I quit drinking Diet Pepsi cold turkey (it used to be the only thing I drank...
  21. Another PO'ed Celiac
    Yeah I was wondering That is one of my nicknames actually and my avatar in other places! Doesn't help that I hate to cook and really find it pointless to go through all that work for a few bites of food when I'll be hungry again in a couple hours and reheated food just never tastes the same. I was...
  22. Another PO'ed Celiac
    42 year old mom of 3, just diagnosed in December...Merry Christmas to me. Biopsy Marsh Score 3A plus the following blood work: IgA, Serum 196 mg/dL 80 - 463 mg/dL Gliadin Antibody (IgA) 22 U <20 U Gliadin Antibody (IgG) 52 U <20 U Tissue Transglutaminase Antibody 14 U/mL U/mL Doc says yep you've got...
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