Jump to content

Vanillabean

Advanced Members
 View Profile  See their activity

  • Posts

    13

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Latest Celiac Disease News & Research:

Everything posted by Vanillabean

  1. Vanillabean
    Oh, it definitely struck me as very odd! It also says "no significant increase in intraepithelial lymphocytes". That's their favorite word I guess! My blood work pre-biopsy also showed increase lymphocytes and my primary doctor said it usually means increased inflammation. Doing all the things I can now---filing a complaint, I've emailed my doctors...
  2. Vanillabean
    Thanks Frieze, I'm planning on filing a complaint in the next few days.
  3. Vanillabean
    That's great, Gertrude! I'm glad your doctors sound more competent than mine. And that you're starting to feel better. I haven't had any abdominal or joint pain in the last few days, and I feel like I have more energy for sure. I've been feeling a little off/dizzy but that might be from gluten withdrawal. Good luck with everything!
  4. Vanillabean
    By the way, I got my biopsy pathology report and the doctor took 2 biopsies, not the recommended 4-6. It says no "significant villous blunting not seen." I don't know if I should laugh or cry---so frustrating.
  5. Vanillabean
    Thank you, this does feel helpful and reassuring. Did you end up getting blood tests again after going gluten-free? Do you have to worry about cross contamination as much as with a celiac diagnosis? How do you explain it to friends and family? Non-Celiac gluten sensitivity sounds so vague and I know it's dumb, but I worry about people not...
  6. Vanillabean
    I just got a call from the Kaiser GI department. The doctor who performed the endoscopy was supposed to call me with the results and instead the receptionist did. She said "Dr. X says your biopsy was normal and you do not have celiac disease." Word for word, that's it! So not only did I not get to talk to her the day of my procedure, but not at all! They...
  7. Vanillabean
    A quick update: I emailed my primary doctor and she is on the same page as the GI doctor, saying the Endoscopy looks normal. Even before we've gotten the biopsy back. By the way, I should mention I'm dealing with Kaiser in the Bay Area, CA and everything I've found about Kaiser on these forums is horrible and similar to my own experience. I specifically...
  8. Vanillabean
    Gertrude, Sorry to hear you're going through the same exact thing. It makes me feel less alone to know you are experiencing this at the same time as me. It's a horrible feeling, and I'm already an anxious person so waiting just makes it worse. You are so right--it feels like a total bias on the doctor's part. They don't even address why there would be...
  9. Vanillabean
    My current blood test from my regular only included the tTG, but I'm not sure why. More questions, but I feel prepared to ask both my regular doctor and the GI doctor. I agree with you, I think gluten is the culprit...I do feel ready for the challenge of going gluten-free, and I'm already daydreaming about all the pastries I can make. I think it'll...
  10. Vanillabean
    This is a really helpful reminder. I definitely will! Thanks.
  11. Vanillabean
    Hi, I'm new here. I'm a 30 year woman, also a professional baker/pastry chef, I'm working with flour 40 hours a week, and I suspect I have celiac. I just had my endoscopy yesterday and I seriously need to rant because I had a horrible experience. A few weeks ago I finally went to my regular doctor to get some blood work...
  12. Vanillabean
    oops, I meant to post this in Pre-Diagnosis and i'm not sure how to delete a post! Sorry, I'll post this there now...
  13. Vanillabean
    Hi, I'm new here. I'm a 30 year woman, also a professional baker/pastry chef, I'm working with flour 40 hours a week, and I suspect I have celiac. I just had my endoscopy yesterday and I seriously need to rant because I had a horrible experience. A few weeks ago I finally went to my regular doctor to get some blood work done. I have...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.