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NHMom1016

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by NHMom1016

  1. Hi Everyone! Thank you for all your responses! This site is so helpful and I appreciate everyone who replied to my post. I was able to get an earlier appt with Maureen Leonard who was absolutely wonderful like you all said and after more testing and even a genetics test, my son now has a diagnosis of celiac disease. He's been gluten free now for a few...
  2. Thank you so much! I just called to make an appointment with Dr. Fasano, He is booked out till September I will try Maureen Leonard. If I can't get appointments for awhile, do I keep my son on gluten? At the moment, we are waiting for his 2nd test results (celiac panel) to come in. (Should be within the next few days) to ensure it wasn't a false positive...
  3. Hi, I am looking to see if anyone has any recommendations for a good pediatric celiac specialist or GI in NH or Massachusetts. I have read that there are many specialists now that feel a biopsy does not have to be done in some cases. This is who I am looking for. Thank you for your time!
  4. Thank you for your post! I'm still trying to decide on the biopsy. I am currently trying to find a doctor who will diagnose on the blood tests. We just had his blood re-tested because his results were very high before and it was mentioned that it "could" be a false positive? Waiting on the new results now.
  5. Thank you for your reply!! We went to the GI and he strongly thinks it is Celiac Disease based on the high positive test results but wants to do the biopsy to make diagnosis. I don't want to put my son through this if we can do a gluten free diet and re- test him in a few moths to see if it helps. I was told twice now that doing a biopsy is the gold standard...
  6. My 4 year old recently had a celiac panel blood test done due to his ferritin not going up. These are the results I was given: IGA – 123 – Not High Gliadin IGA – 179.62 – Super High – Positive Gliadin IGG – 55.03 – High – Positive TTG IGA - <300 – Positive TTG IGG - <300 - Positive I was ...
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