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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by LaurainAZ
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ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Yes, unfortunately that's the case. However, I'm going to the Mayo Clinic in Arizona now and for the first time in a long time, I'm making progress. I've only had a few of my appointments (they set me up with a bunch), so they're still figuring things out, but they made some medication switches that have been helpful and on Friday they're going to check... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Yep I have the D2 little green footballs! Wow! Okay well that's on my list to discuss with the doc when I go back next week. What's the difference between D2 and D3? -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Hi Plumbago, I currently take Lomotil, Zantac, Clariton, Synthroid/Levothyroxine, Lexapro because I was experiencing a lot of anxiety and stress (as you can imagine), and prescription strength Vitamin D once a week - it's like a 50000 unit blast once a week. I also have a Trammadol prescription for when the pain gets really bad, but that's on an as needed... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
That's really interesting - I had shingles once when I went through an incredibly stressful period in my life. This was a year before I knew I had Celiac. I guess since I started getting them recurrently a few years later (also in Dec. 2014 is when it started up again, around the same time as all this other stuff, and I should mention that was also a nightmarishly... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Yeah, I'm clear on the STD front lol - I've been married for a year and a half and we're both clean. They tested for it anyway when I was in the ER though, and it was all negative, -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I forgot to mention in my first post that I also get frequent infections. I actually get Shingles recurring constantly every few months, that's the most common one. But if a bug goes around the office I definitely get it and usually get hit hardest for the longest. The noro virus has taken me out a couple of times too, as well as gastroenteritis (if that... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
The last GI specialist I saw said he uses pill cameras sometimes, and he told me we could do that if necessary, I'm not sure what that means exactly. I guess he's waiting to see what happens after I meet with other specialists, including endocrinology. They saw the air bubble on a CT Scan the first time I was hospitalized. I am in the process of having... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I had a urine test done recently and they found some white blood cells and leukocytes, but no blood this time. They thought maybe I had a bladder infection or UTI, but the culture didn't grow anything. I'm 34 now, so the gallbladder happened 12 years ago. I know they said they saw an air bubble once in the duct where the gallbladder used to be, but... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
As far as the kidney goes, they found blood in my urine but no stones when they did a CT scan, which is why they gave me the diagnosis of kidney infection. I had to present at a conference for work that day, and I did so with the color completely drained from my face, in a cold sweat, and horrible pain in my back and bladder areas. I could hardly stand. It... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
That's where it gets tricky - the first doctor that diagnosed me with Celiac didn't find the gene/antibodies, but based on a lot of other things she found in my blood work she still diagnosed me with Celiac Disease. I know one of the things she based this one was the severe lack of basic nutrients- vitamins and minerals - in my blood, and the fact that Celiac... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I'm taking the vitamin D because the new endocrinologist prescribed it, but this time they didn't prescribe the B vitamins. I should preface this with I just moved across the country to Arizona so I had to get new doctors for everything, which is both good and bad I suppose. Though I suppose I could go to the nutrition store to get some B vitamins. I don... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I wonder about that too, but so far no doc is willing to do the surgical procedure to look for it. They say that since its an invasive procedure, they try to avoid it unless they are almost certain you need it. Instead they treat it preemptively. I had one doc do that by giving me birth control, and I did get a little better, but almost right after I got... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I actually was put on another thyroid medicine to replace the synthroid for the past year and a half or so, but it wasn't making anything any better, so they switched me back to Synthroid about a month ago. I have low vitamin B levels too, I guess I have since 2012, that was one of the things that tipped the doctor off to look for the Celiac Disease in the... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Sorry I replied to this post twice. new to the forum. -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
I wonder about that too, but so far no doc is willing to do the surgical procedure to look for it. They say that since its an invasive procedure, they try to avoid it unless they are almost certain you need it. Instead they treat it preemptively. I had one doc do that by giving me birth control, and I did get a little better, but almost right after I got... -
ARCHIVED Docs can't seem to figure me out - wondering if anyone has had similar experiences
LaurainAZ replied to LaurainAZ's topic in Related Issues & Disorders
Yes - back in 2012 I had no idea I was gluten sensitive and had never of Celiac Disease, but I went to the doctor to find out why I was seemingly getting sick every time I ate. That doctor was the one who referred me to the endocrinologist who ended up finding my thyroid cancer and Hashimotos, and in the process of doing blood work she said the results also... -
Hi everyone, I was diagnosed with Celiac Disease several years ago in 2012 (though I've had several doctors go back and forth, some say it's Celiac, some say its a gluten sensitivity - regardless when I eat it I often get so sick I'm bedridden for a few days and I get skin rashes and joint pain). I also had thyroid disease and thyroid cancer, and had...