dawnsusan

I know it's been a long time since I posted on this thread, but for record-keeping purposes, for anyone doing research, we went back to our GI and she said, "She's absolutely fine. No celiac. Her blood work was negative and the genes are negative." She only cares about DQ2 and 8 and anyone who looked at any other genes was up a tree. I'd rather be...

Yep, She's starting with enterolab. She doesn't know much about it, has a young relative with PKU and does not want to face idea of gluten-free diet. But she feels so sick, and she's just kind of over it since she's had problems for her whole life. Enterolab is a good place to start. Thanks everyone. Maybe we helped save a life. I know dealing...

Thank you. I THOUGHT that was very low. At least she is getting Enterolab testing done. She is ordering it this weekend. Thank you very much. I will do more research. I guess she needs a good doc who really knows Celiac.

I have a friend who has some baffling symptoms that make me wonder about celiac. Only signs, besides chronic fatigue, are constipation -- since INFANCY!!! And very low iron. Her last bloodwork showed her hemoglobin at 2 That's right.....2. The ref. range was 100 - 200. If she takes iron, she gets more constipation. Background -- Irish. ...

I have been undiagnosed for a few years. Two years ago, I stopped gluten with my son, who has autism, and daughter who has ezcema, a terrible onset case of DH, and some possibly celiac genetics results. I have GI symptoms, so it made sense to stop, oh, and and positive enterolab results. Any blood work I did was negative, as we ( my primary and I) didn...

We take our own soy sauce with us when we go places. Wheat-free Tamari. That might help

Thank you to everyone who replied. This is looooong, sorry, but I am so elated to be able to talk to people who understand. I'm sure I'll settle down soon. This certainly helps me right now and I am grateful to you. Just for the record -- I don't seem to have the willpower to just stop forever if I am not sure I need to. What if it is anxiety and related...

Hi, This is my first post. Please forgive me if I am asking questions that can easily be answered with a little research. I did check archives briefly, and didn't find anything. Here is my issue: I have a son with autism. He has had GI problems since age 2 weeks ( when he had to have breast milk supplimented by formula and "calorie enhancer"due...