Jump to content

moonunit

Advanced Members
 View Profile  See their activity

  • Posts

    48

  • Joined

  • Last visited

 Content Type 

Profiles

Forums

Events

Blogs

Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by moonunit

  1. moonunit
    I love the artichoke/jalapeno dip there, and the Chachi's salsa, and there was an honest-to-goodness gluten-free CAKE AND FROSTING MIX on the shelves recently! I bought one even though I had no need for a cake, just so that I could support their decision to carry something so special for us. I have a question. Has anyone determined whether the tri-tip...
  2. moonunit
    Okay, I'm pretty sure I know what you guys are going to say, but I will ask anyway. I have a dilemma. I have tested positive through Enterolab, and my son has always been a bit fussy by nature (he's 15 months old) so I had him tested as well. His test came back positive, but look at the numbers: Fecal Antigliadin IGA 15 (normal <10) Fecal Antitissue...
  3. moonunit
    That's awesome, being proactive and talking to a stranger like that! I am trying to learn to be so brave myself. Also, I'm hoping to put together an article to try to increase awareness along those lines on the Gather site (link in my sig). Something that gets people thinking about how it might be POSSIBLE that their symptoms have a reason and aren...
  4. moonunit
    I'm sorry to hear you're not getting help from your docs! It is true that not everyone who thinks they have celiac disease/gluten intolerance necessarily has it, but there are a LOT LOT LOT of people who are told by doctors that they don't have it when they clearly do. My tests (Enterolab, blood work through regular doc) keep coming back positive and...
  5. moonunit
    Maybe you could get those child-proofing things that only let you open a cabinet about an inch before you have to use the catch. Less blatantly insulting than a padlock, and if she asks you could just say "I know you forget sometimes that the pans have to stay separate, and I thought the catch would remind you before you accidentally used something." ...
  6. moonunit
    ONION RINGS?! I could have ONION RINGS?! You just made my day. I'm going to try that as soon as possible!
  7. moonunit
    You guys are making me SO HUNGRY! I may be gluten-free but I'm so glad I don't have to give up guacamole, filet mignon, or champagne! Hmm, preferably all in the same meal.
  8. moonunit
    Hi everyone! I went away for a while, because doctor after doctor all said NO, you do NOT have celiac disease, you do NOT have a gluten intolerance, stop asking because we are not going to answer that question again. (I'm paraphrasing... the actual quote was "we're done pursuing that.") I went gluten-free for three months (AGAINST a "celiac expert...
  9. moonunit
    There's a decent article about celiac disease in the latest issue of Good Houskeeping magazine (August). I had read the content on a web site before I think, must be a reprint, but it's good and mentions the many different symptoms etc. I am hoping to write a letter to the editor thanking them for the article and/or mentioning that you don't need to...
  10. moonunit
    I'm glad you got your answers and that they were what you wanted! I posted on the post-testing board but not here... I did send away for the test and got my response the other day. It says I have a gluten intolerance but no malabsorbtion (I've been gluten-free for two months). Up till now I've been skeptical that gluten intolerance was part of...
  11. moonunit
    I got the Crohn's test from them at the same time. You're right, the celiac test would not indicate this... but since several doctors insisted that I had Crohn's despite all tests up to that point being negative, I figured the extra $50 for that test would be worth it in the grand scheme of things. I still might have Crohn's (too? instead?) but perhaps...
  12. moonunit
    Just posting in case this information helps someone... got my Enterolab results back and they say positive for gluten intolerance (and lactose intolerance) with no sign of Crohn's. Now I have nine opinions, and we're 3, 3, and 3. BUT, something else has changed! As I started Week 9 of being gluten-free, something amazing happened. The D stopped! ...
  13. moonunit
    Thanks, everybody. I agree, you wouldn't go buying the test without a suspicion, and you wouldn't post here very often if it all came back negative, so I fully expected the majority of people here to test positive with Enterolab. I was just having a "suspicious moment." I got the test in the mail today and plan to send it back tomorrow. Either way...
  14. moonunit
    Hey all, after my many doctor trials and tribulations, I've decided to do the celiac panel and genetic testing kit from Enterolab. The gluten-free diet isn't entirely working for me at six weeks into it (I'd call it inconclusive at this point), so I'm not sure the doctors are wrong that I don't have celiac disase. But I figured this extra test is worth...
  15. moonunit
    That's a tough thing for me right now... so many times we have been told not to necessarily trust that the doctor knows best, but at what point do you stop asking and just accept the answer? I'm doing the Enterolab testing, mostly for the genetics to find out whether it's necessary to test my kids, but since the other tests are available at a discount I...
  16. moonunit
    Okay, after my primary care handed me positive (but incomplete) blood work and said it was borderline, and my gastro did an endoscopy and biopsied only two pieces, which were negative, both doctors said I do not have celiac disease and to stop looking in that direction. So I made an appointment with a doctor who specializes in celiac disease for a second...
  17. moonunit
    Hi there! I don't have the other answers for you (but the people on the board here are very knowledgeable and can help you!) The "gluten challenge" is where you DO eat lots of gluten for a set period of time after having gone gluten-free and then get a biopsy or blood test. I think what you are asking is will docs diagnose on a positive response to a gluten...
  18. moonunit
    I'm in the San Diego area... don't forget the big conference in L.A. on May 20th and the fundraising walk/art auction in San Diego the same day! I think they're listed on the calendar section of this site if you want details.
  19. moonunit
    Argh, I'm so outraged for you that I had to literally walk away from my computer before I could come back and add my support! He is wrong, you are PROBABLY right (see, I'm even allowing for the scientific uncertainty about the stool testing procedure, since it's not widely accepted at this time). This is no FAD. That's like saying... okay, every time I...
  20. moonunit
    Thank you so much for that info! Only having seen it written before, I had guessed too and that's how I was pronouncing it (see-lee-yack). Glad to know I was right. Nobody had ever corrected me or anything, but everyone I said it to had either never heard it before either or was a doctor (and based on what else they knew about the disease, I doubted they...
  21. moonunit
    Hello! One thing I'd recommend is to get a look at the biopsy they sent to the lab. The use of the word "sprue" (which is by some considered a little outdated) might mean that the doctor you saw is not current with information about celiac disease and did not take enough biopsy samples to test accurately. This happened with my doctor -- the minimum...
  22. moonunit

    ARCHIVED Finally Found A Keeper!

    moonunit replied to floridanative's topic in Doctors

    I'm SOOOOOO happy for you!
  23. moonunit

    ARCHIVED Gi In Florida

    moonunit replied to floridanative's topic in Doctors

    Not that it's any consolation, but my dad just tried to get an appointment with the Florida "expert" Dr. Borislow and the person answering the phone said he does NOT specialize in celiac disease and has no idea how he got into the book in the first place. She grudgingly took the appointment but didn't really want to. Now I'm wondering how much to trust...
  24. moonunit

    ARCHIVED Gi In Florida

    moonunit replied to floridanative's topic in Doctors

    Gosh, I'm so sorry to hear that! I wonder if you could try writing to one of the doctors who IS recommended but is too far away and ask THEM whether they know anyone to refer to... how frustrating for you all!
  25. moonunit

    ARCHIVED Gi In Florida

    moonunit replied to floridanative's topic in Doctors

    Argh! I so feel for you! Maybe your mother could ask him if NIH's stance matters to him. Here is a link to their consensus statement, which they built to make sure everyone was in agreement on the basics of celiac disease: Open Original Shared Link I plan to print this out and give a copy to my soon-to-be ex-doctor, who made similarly uneducated...
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.