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3 weeks gluten-free...my GI said to eat gluten-free after positive TTG blood work but negative endoscopic biopsy. We ate out for Mother’s Day at a restaurant that insisted they were safe and sounded great talking about how they’d prevent cross-contamination. I had a salad with shrimp and an entree of scallops. I’m about 2 hours passed the end o...

I’m sort of terrified of eating straight up gluten as a trial! I was thinking more if I could handle small amounts of cross contamination. Maybe we’ll order a gluten-free pizza delivery in 6 months, haha.

I'm not trying to be my own doctor, but...what the GI was saying just wasn't adding up. Thanks again for your responses. I still think I'm viewing this as "potential celiac" or "celiac but damage wasn't found." But I guess there's also still the chance it's "falsely elevated tTG due to something else." I'll do 6 months of strict celiac-level of...

I really appreciate your responses. Between my blood work, endoscopy, symptoms, and University of Chicago's Q&As, I'm inclined to call this "potential celiac," and I'm definitely sticking with the gluten-free thing and documenting closely how I feel. I'm thinking I'll request follow up blood work in 6 months and go from there. If my tTG is down,...

I do have the report, and I know I asked how he took the biopsies. I can't remember the proper term, but he described "one snip takes two samples," so every two samples were taken from the same area. Here's what I have... Specimens: A. - Tissue, Duodenal biopsy B. - Tissue...

It took a very long time before you noticed a good remission of symptoms? Do you know about how long? I guess I'm just bummed that I had a (possibly coincidentally) good week gluten-free and then a bad night. I wanted things to be cut-and-dry better from then onward. LOL, I'm pretty good at worrying about all of the things simultaneously! You are...

That's what I'm thinking--giving it some months and continuing my food/symptom log and seeing how things go. I am close enough to University of Chicago's Celiac Disease Center to make an appointment with their doctors for a second opinion, but I'm not sure if that's worth my time/money. I guess I can just plug away at eating gluten-free and see how it goes...

Okay, I'm going to try to be concise, but that's not my strength. I've had a lifetime of on and off symptoms--more off than on--and most recently has been intermittent nausea, bloating, and stomach pain some days. I've unintentionally lost 20 lbs (15%) since the beginning of 2017. Blood work 3/2018: positive tTG 19.8 (range <15); normal immunoglobin...

I'm wondering if they all relate to one another at all or if it's just random. -What were your symptoms of celiac disease prior to diagnosis? -How bad was the damage discovered with your endoscopy/biopsy? (Marsh rating?) -What's it like when you "get glutened" now? How long have you been gluten-free? Has your reaction changed over time?

Haha, I'm trying to be patient, I promise I do like going over all possible outcomes so I feel like I have a better understanding of things. My symptoms don't seem indicative of other issues (intermittent nausea, bloating, stomach pain...no diarrhea or constipation). And my blood work was clear from other signs of inflammation. But you're very right...

That's what I'm keeping in mind, and why I'm assuming no damage will be found...especially given my "low positive" tTG value. If my blood work was positive across the board or even if my tTG were high I don't think I'd be as skeptical about finding damage in the biopsy. So with a "low positive" tTG I think I'm just second guessing everything and wondering...

I'm also wondering if it might be useful to try for an appointment with University of Chicago's Celiac Disease Center (www.cureceliacdisease.org) since I'm near and my GI kept throwing around "non celiac gluten sensitivity" which does not sound applicable for an elevated tTG which decreases my confidence in that doctor.

So from my understanding tTG cannot be falsely elevated for no reason, it'd be due to a different health issue (though odds are it's celiac)...?

I had my endoscopy and biopsy today and am getting ahead of myself with potential outcomes. Either... 1) the biopsy will be positive and I will officially be diagnosed with celiac, or 2) the biopsy will be negative, which could mean there’s no damage (yet?) or it’s patchy and was missed or my blood work was falsely positive. Right? History: po...

Thank you for sharing your experience. Nothing I've felt has ever stuck for weeks and months and years. It's usually a few weeks where half the days are bad ones, half are okay, and then a few weeks of being okay.