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wdavie

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by wdavie

  1. wdavie
    Research has shown that you can be Gluten Insenitive/intolerant and never develop Celiac Disease. The Intestine requires the Gene DQ2 or DQ 8 to be present for you to be diagnosed with Celiac disease, as it is an auto immune disease, not an extension of an intolerance. You either have Celiac or you don't it is not a case of different degrees. Kind of like...
  2. wdavie
    Try and keep your chin up. A Gliadin IGa positive does not constitute a Celiac diagnosis. I am Iga Pos and so is one of my sons neither of us are Celiac. Did they test his Ttg level this is far more appropriate for diagnosis. Also the biopsy is far better that just this test to tell. I say be 100% sure before making major lifestyle changes. Also he should...
  3. wdavie
    Rice pudding is one of my daughters favorite breakfasts. Wendy
  4. wdavie
    Ah probably another difference in protocols in different countries. I used to nurse in Theatres and we did endoscopes regularly. In Australia and NZ rarely we put people on Fluid only etc, Usually just the usual Nil By Mouth for 8-12 hours. Thanks for your reply, I was just curious cause sometimes the preparations for the tests are quiet difficult and traumatic...
  5. wdavie
    Why the fluid only diet? I would have thought this could sway the results. Grace was NBM (Nil Orally) for 8 hours before surgery but was encouraged to be on a diet containing Gluten up until her biopsy. I hope they find an answer for you as having a sick child is very debilitating for your spirit as a parent. Good Luck. Wendy
  6. wdavie
    The simple answer is that you need to eliminate all Gluten. If your husband is having trouble believing than tell him the possible implications of continuing on Gluten. For example, infertility and intestinal cancers. Whenever I feel it is too hard I remind myself of this. I certainly do not want to sit Grace down one day and say "Sorry sweet but maybe...
  7. wdavie
    Hi, I have recently read a speech by Professor Alessio Fasano, who is the Director for the Centre for Celiac Research in Maryland. That states emphatically that you cannot develop Celiac Disease unless you do carry the DQ2 or DQ8 gene. So that leads me to believe that Celiac Disease and Gluten Intolerance/Sensitivity are 2 different things however the...
  8. wdavie
    We are not seeing a specialist with Grace, just her Ped. He will retest her bloods to check her levels every 12 months or so. Fortunately the only treatment is the gluten-free diet, so if you have a good endo for the Diabetes that should be fine. Wendy
  9. wdavie
    I have been told it is genetic and carried on the same chromosome as Diabetes. A person can carry the celiac gene yet not develop the disease. It is not know what can trigger a person to develop Celiac Disease. Some schools of though are attributing it to the increase of Grains in the human diet over years and that we now eat alot more than previous generations...
  10. wdavie
    What a great post Molly, Thankyou. We have decided that Grace wont have another biopsy for quiet sometime as the first one was so obviously positive of Intestinal damage. She will have bloods retested in 12 months (18months after diagnosis). I am lucky that she was so easily diagnoses and we don't need to have continual testing wtc. I will be sure...
  11. wdavie
    Thanks Mariann, You are not ranting at all, I understand your frustration completely. Myself and 1 son have shown a slight elevation in one of the blood tests but not enough to indicate further testing or going gluten-free. Niether of us are symptomatic, he is 5. So I have opted to play the waiting game. I will have bloods done in 12 months on both of us...
  12. wdavie
    I too am travelling to Maui so Please if there is anyone out there with suggestions please let us know. Wendy
  13. wdavie
    Hi, My name is Wendy. I have a 9 year old daughter, Grace, who was diagnosed in September last year with Celiac Disease after bloods and biopsy both returned strong positive with alot of intestinal damage. We live in New Zealand, and I am looking forward to learning from other parents of celiac kids. All our family have been tested and So far Grace is the...
  14. wdavie
    I am of the understanding that you can have positve bloods but negative biopsy, and I have been led to believe that Biopsy is 100% gold standard. As Flattened Damaged villi is the result of Celiac Disease (auto immune response) as opposed to gluten intolerance which causes illness/upsets but not an autoimmune response. My daughter had a positive biopsy last...
  15. wdavie
    Hi, we are coming to Maui in June from New Zealand. My daugher was recently diagnosed as Celiac and well I am worried about where we can eat etc. This may be silly but after getting to know New Zealand products and food etc I am worried about travelling and having trouble finding products. If anyone can suggest places to eat in Maui (Southshore and Paia...
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