JenP
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Latest Celiac Disease News & Research:
Everything posted by JenP
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ARCHIVED Someone Please Just Tell Me What To Do!
JenP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
For those of you who read and responded to my topic last week "My Doc is the biggest Jerk", thank you. It was excellent advice from everyone, however, I need more help so I am back. Just a recap, Doc #1 ran a two panel blood test, Anti-gliadin (came back negative) and transglutamasine tissue (came back a very positive 69). Biopsy was negative, though he dismissed... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Yep, it sounds familiar. It just seems like whatever is going on, it's taking me down fast. Within 6 weeks I have felt a downward spiral like never before. I ran or did the elliptical machine 3-4 miles a day, 4 days a week. I play singles tennis matches lasting 1 1/2 hours once a week, along with one hour high intensity tennis drills once a week. I did weight... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
LOL. I do have a pic. I'm definitely going to look into that. Yep, PA. is not far at all. Obviously I'd hope not to have to cross state lines to get the care I need. I'm in the midst of one of the best hospitals in the country. I just need to find the right Doc.....and it very well may have been doc #1. It's just when I asked him, have you ever had a patient... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's pretty much what Doc #1 said. He kind of waffled a bit about whether or not I should have the colonoscopy, but felt I should just start the diet instead and then do the other if it was necessary. I just didn't feel like I could be the greatest judge of whether or not this was Celiac because I do have days that I feel OK. They're becoming more infrequent... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I have not gone Gluten free. They told me not to because it would interfere with any more tests that they wanted to run. The more I've tried to pay attention to what I'm eating, I am seeing some patterns. For instance, my husband's sicilian family makes breaded chicken and pasta every Sunday, and the past two Sundays I've left there feeling horrible. I had... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Thanks Bev. I came home steaming yesterday and the first thing I said to my husband was "I can't believe I'm going to let that a**hole go up my a**!!! Am I crazy!?" I do have one more name of another GI Doc, the only issue is he's almost an hour away. He apparently has a wonderful bedside manner, I'm just not sure if he "specializes" in this or not the way... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP replied to JenP's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
That's good advice. I'm going to decide what to do next after the endomysial blood test comes back. Dr. Ego told me yesterday that if this one came back negative, that it was highly unlikely that I had Celiac. If it comes back positive, chances are extremely high that I have Celiac. I was going to ask him if it did come back positive, if that meant there... -
ARCHIVED I Met My New Doc And He's The Biggest Jerk
JenP posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
I'm new here and have spent quite a bit time browsing this site for the past couple weeks when I was first told by my first doc that I was probably a celiac. I had positive bloodwork, but a negative biopsy. My doctor seemed overwhelming convinced that I had celiac and said I should start a gluten free diet and see how I feel and call him in a few weeks. I...