cshinaberry19

Thanks for the input, Iron Jack. Weirdly enough, one of the additional side effects of the CVID is that allergy tests don't work. The lack of immunoglobulin in my body (and I have a very profound lack) interferes with the pathway that registers allergic response. One of the things that led them down the path that eventually diagnosed me with the CVID...

Thanks to everyone for the replies! Some responses: ChelsE: Yes, CVID = common variable immunodeficiency. When I was at university I used to walk everyday past a plasma donation clinic, and the only people who you ever saw going in and out were hung over students looking for cash for beer or homeless folks! Imagine my horror when the doc...

I haven't been diagnosed. I had the blood workup, but it didn't show anything useful because of the CVID. (My body is producing virtually no immunoglobulin because of the diease, so the test isn't a good diagnostic for me.) Biopsy is high risk for me, too, because of the risk of infection related to CVID, so I we're trying to dx by diet (or at least see...

I've been on a gluten-free regimen for over 3 weeks now and I am seeing ZERO change in my symptoms. It seems from what I have read on this forum and elsewhere that many, many people see some improvement almost immediately, or at least within a few days. Suffice it to say I'm feeling a little skeptical at this point. I feel I can say with almost 100% certainty...

Has anyone tried to make this at home? I don't like plain yellow mustard, and am suspicious of all the dijons and their ilk because the label always lists the dreaded generic "spices." If anyone has tried, I'd welcome any recpies and/or tips.

I am just now going gluten-free, and spent the afternoon at the local natural foods co-op working on what to buy. The multivitamins and calcium supplements I've been taking have gluten, and the ones they had at the co-op that were gluten-free - OUCH! on the price! I'm wondering if there are any good brands that do bulk mail order as I'm on a limited budget...

Is it gluten-free? Google isn't turning up much one way or the other and I'm not finding it on either the safe or forbidden lists...

Thanks for all the input... I really am leaning towards doing the diet and not worrying about the biopsy because there are too many risks and pitfalls for me with invasive procedures, especially unnecessary ones. If all it's really essential for is peace of mind, then I'm OK without that. I have been suffering a long time with other illnesses that there...

My gastro thinks it likely that I have celiac disease based on symptomology and the fact that I have CVID (apparently as many as 50% of celiac pateints have this dual diagnosis). But because of the CVID, Ig panels aren't very useful in diagnosis, and thus she's advocating biopsy. Not only is the thought of having that done (twice!) less than jolly, I also...