Jump to content
  • entries
    17
  • comments
    21
  • views
    31,378

About this blog

3 years after diagnosis and I still don't have a clue!

Entries in this blog

"s" Day Is Coming!

Alrighty, so the day is fastly approaching, and I can
mis-chiff

mis-chiff

0

The End Is In Sight!

Ok, I haven
mis-chiff

mis-chiff

0

Peanut Butter?

I need someone to clear this up for me once and for all! Is Kraft peanut butter gluten free or not??? I called them, they told me that it is, then my daughter calls and tells me it's not! I re-read the ingredients...what am I missing?   Please help!
mis-chiff

mis-chiff

7

Fed Up With Doctors

No wonder I can't move ahead in my life - something is always pulling me back!   I don't get it - not only did they miss my diagnosis for 20 years, apparently the "complete" hysterectomy that I had 22 years ago - wasn't complete! They told me they took "everything" out.   While doing the tests for the other problems I am dealing with at the moment they happened to find something that appears to be an ovary! So why give me breast cancer causing drugs for the last 20 years (HRT) if I never nee
mis-chiff

mis-chiff

0

Monday For Sure?

I spoke with the doctor's secretary twice last week to try to get the results. First time I called her she said I had to go for another test as they needed to see something else. I asked her if there was anything showing on the left side as I spent most of the weekend in bed (last weekend)She said yeah, a lateral blah blah - I missed it. So I called her the next day to clarify...something about a 2nd hernia is what I got out of that call.   So I made an appointment to go and see my family
mis-chiff

mis-chiff

0

How Rude!

The teckie that did my test last sunday told me that the doctor's office would get the results by wednesday....Well wednesday came and went with no call, so Thursday afternoon I call the doctor's office and tell the lady why I'm calling she says she will look into it and call me back.... Friday at noon I still hadn't heard so I called the office again, this is what I got "Thank you for calling the Doctor's office, if this is between Monday to Friday 9:30 am to 5pm we are in the office exce
mis-chiff

mis-chiff

0

It Wasn't What I Thought It Would Be!

You'd think with the world so advanced in technology, someone would take the time to make that stuff Telebrix taste better. Would it be that hard? Seriously, I don't know! The CTscan was nothing like I expected. I had an 11 am appointment, I wasn't allowed to eat 4 hours before the test so at 6 am - I was sleeping anyway Then at 9 am I had to mix the Telebrix with 450ml of water. So I got up at 8:30 and had 2 cups of coffee one after the other, I'm a self admitted coffeeholic and I had
mis-chiff

mis-chiff

4

Surgery Update

So I am going for a CT SCAN on Sunday.....Sunday? of a long weekend... Well I never It apparently is better than the ultrasound I was supposed to be setup for. Never had one before so it should be interesting.   I have another issue going on in my life, a pretty big one - which may take time to work through! There was an incident where my father is buried and it's pretty creepy and extremely upsetting, needless to say I'm not having much luck being "good" with my diet. I'm trying, but t
mis-chiff

mis-chiff

0

Gotta Have More Surgery... :(

So I went to the doctors/surgeon's office today...and I have to have surgery to repair an insitional hernia I got when I had the last surgery to remove part of my bowel. which came about in the first place when they discovered I had celiac disease... the irony of it all... Now keep in mind, I have been sick and undiagnosed for 20 years, so imagine...if they caught it earlier all this crap now would have been avoided....OMG I'm furious!!!!!   And since my last surgery I haven't really hea
mis-chiff

mis-chiff

0

It's Been 4 Days And I Haven't Cheated!

I am very pleased with myself, it's been 4 days and I haven't cheated! Don't get me wrong, I haven't learned to cook or anything simple like that! But I've been working and I never really had the chance to cheat, BUT I didn't cheat cause I managed to eat only 1 meal a day! It was always dinner and even though it was pretty much the same thing twice chicken and potatoes and veggies for 2 dinners and fish potatoes and veggies for the other 2.... But at least it's a start on not cheatin
mis-chiff

mis-chiff

0

A Never Ending Saga!

Everyday it's the same battle - "what do I or don't I" eat? I don't want to sound like a wimp or anything but this sucks! 3 years and I can't figure it out! I have alot more information available to me now but it's got to be simple I can't say that enough! I don't want to make 3 course meals with fancy schmancey food and sauces. I want a fast great tasting meal at least 4 times a week, rest of the time I don't care - there is always fish - or eggs...but summer is coming and time for the
mis-chiff

mis-chiff

0

Too Much Info!

After re-reading my posts I can see I definetly need help...so I went on a little search - that turned into a big search and confused the hell out of me! I thought I knew nothing before - I am now convinced of it! There are words I have never even heard of, words I cannot pronounce..... :eek: I had a guest come into the motel where I work and she told me she has a daughter that is Celiac. She had some great cookie recipes - but again - I can't cook! So she made them for me and left them at th
mis-chiff

mis-chiff

10

I Can't Stop!

I would rather starve for 2 days than eat some of the stuff I can cook I am sooooo sick of rice - I haven't made it right yet! I can go for a couple of days when my willpower is in gear, I won't cheat, I'll just wait till I'm finally hungry enough and I'll make fish and veggies and of course RICE!   But when I have brain fog and I just don't care, I'll break down and eat a burger or something...I figure I'll pay for it later - I do ... but at the time it seems worth it! and then of cou
mis-chiff

mis-chiff

0

Am I The Only One?

How come everyone seems to know so much about this disease? Is it cause you have the handbooks? Go to the meetings? Know how to cook? Are the handbooks that big of a deal? Sheesh for the life of me I can't figure this stuff out...it seems unless it's in simple step by step instructions - I can't seem to comprehend it I don't mean things like you can use this product or that product - what I need is ready to prepare meals - kinda like the way I have them on my website (www.theceliac.com) under
mis-chiff

mis-chiff

0

It's Amazing!

Isin't it just amazing how people around you have absolutely no clue as to what it's like to be gluten-free! Everybody wants to go out and get "pizza" or "burgers", even after repeatedly telling them about being celiac. The worst....a family member....living with a person who watched what you went through for 20 years, and now on the road to recovery - a total 360 life change - and they still ask "WHAT DO YOU WANT ON YOUR PIZZA"? OMG - come on! This is hard enough...help me out!
mis-chiff

mis-chiff

0

A Long Time....

I have a website Open Original Shared Link that tells my story in a nutshell...but I want to start at the beginning and end up where I am today! I am still having issues BIG issues! I have had surgery (I'll get into that) as a result of the celiac disease, and I'm still not done! Talk about poor health! You live your life thinking things will get better then BAM poop happens! I want so much to have a normal life again...I say normal cause I know I've changed and I don't like who I am now!
mis-chiff

mis-chiff

0

More To Come!

I just found this forum again after almost a year of lost hard drives and computer crashes and anything else that could go wrong! I plan on getting active again and getting the information I need to live my life properly, without resorting to eating foods I'm not supposed to! Over the next month I plan on updating my web site - Open Original Shared Link - to what I have learned to date, however, I will keep it as simple as possible because when I was diagnosed I couldn't find anything I could
mis-chiff

mis-chiff

0
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.